About CLL Horizons 2019

The CLL Horizons conference is a unique opportunity for patient advocates and patient organisation representatives supporting CLL patients to:

  • Learn about the disease, treatments and latest research from leading doctors;
  • Hear from fellow advocates on key topics, including awareness, education and drug access;
  • Meet and network with others doing similar work, giving them the opportunity to discuss issues facing CLL patients.

Attendees will gain important knowledge that will help them improve their support of CLL patients in their communities.

The conference will be held on the 19th to the 21st September 2019 in Edinburgh, Scotland at the Novotel Edinburgh, with breakout sessions at the Edinburgh Sheraton on 20th September.

The two-and-a-half-day conference will be conducted in English. Therefor delegates applying to attend should be English speakers.

The 2019 event has been organised to overlap with the 2019 International Workshop on CLL (iwCLL) being held between the 20th September to 23rd in Edinburgh. This creates opportunities for additional networking, learning and development of collaborative initiatives between global CLL clinical and advocacy communities.

The CLLAN Steering Committee is working to ensure that the conference includes topics of importance to the CLL patient community and provides a unique opportunity for participants to share experiences and best practice. The goal is that attendees will be able to increase and/or improve their capacity to meet the needs of their CLL community and optimize their advocacy activities.

Meeting Schedule

CLL Horizons 2019 starts on Thursday 19th September and will end on Saturday 21st September with a farewell lunch at 13:00. An optional city tour will follow. The 2019 Horizons programme features medical specialists and advocacy leaders from around the world.

Day 1 at CLL HQ, Novotel
10:00 to 1700. CLL HZ background, CLL foundation learning, advocacy sessions, topical workshops and capacity building.

Day 2 at CLL HQ, Novotel
09:00 to 11:00. Clinical science and advocacy sessions.

Day 2 at iwCLL HQ Sheraton
12:00 to 17:00. Shared session between clinical and advocacy community, exploring state of the art medicine, access, treatment & disease management advances, limitations, challenges, and collaboration between the two communities to improve outcomes.

Day 3 at CLL HQ, Novotel
09:00 – 12:30. Clinical and advocacy talks, prize giving and farewell lunch

Further agenda information will come available during April

Your opportunity to share! Prepare a poster!

This year’s conference will include a special poster session and award presentation that will be held on Saturday 21st September ahead of the farewell lunch. Posters will be exhibited during the Horizons conference in the main event hospitality area, to allow representatives to discuss their work during intervals.

We are inviting CLL Horizon participants to submit an abstract for poster presentation. Template and guidance is available here for download clicking the button on the right.

For further information, please contact info@CLLAdvocates.net

Poster presentations are a great opportunity to interact with other CLL Patient advocates and groups and showcase your organisation on a worldwide platform and share your activities and/or best practices.

Registration Process

Registration will open on 8th April 2019 and delegates are required to register by 29th July 2019.

Travel Arrangements & Conference Cost Allowances for Delegates

CLL Advocates Network will cover costs for 1 delegate from each qualifying patient organization to attend CLL Horizons in Edinburgh. Costs will be covered for travel from country of residence, accommodation and the conference itself.

This includes:

  • Economy flight or other cost-effective travel to Edinburgh
  • Taxi from the airport to the conference venue
  • Maximum 3 nights of accommodation in a single room
  • Conference attendance, including catering
  • Internet access in the conference room

Delegates are responsible for booking their own flights, visas and 15 minute transfer from Edinburgh Airport to the Novotel Edinburgh. The CLL Advocates Network will reimburse up to the equivalent of €400 for delegates traveling within Europe and up to €900 for those traveling intercontinentally. This covers the costs of travel only to and from the venue e.g. flights and taxi from airport. CLL Advocates Network will not cover incidental costs like bar, mini-bar, room Wi-Fi, phone calls, other taxi costs, upgrades for double rooms, relatives attending the conference, and any other non-official activities.

If you would like a 2nd delegate from your organisation to attend, their costs for flights to Edinburgh and a registration fee for the conference of €500 will need to be covered by themselves or your organisation. The fee covers attendance at the conference, catering, and hotel (to a maximum of 3 nights stay in a single room).

A limited number of scholarships are available on application.

VISA / Travel Documents

Please make sure that you have valid travel documents.

Information about visa requirements for those travelling to the UK and what you need to do to apply can be found here: https://www.gov.uk/check-uk-visa if visas are required ensure you allow up to 3 months for visa confirmation, ensure you apply for visas before 18th June.

More Information

Should you need any clarification about attending CLL Horizons

General event information and pre – registration enquiries, email: info@clladvocates.net

Event registration and accommodation queries contact:
The Event Manager, Natasha Sambhi, natasha@successful-events.co.uk

Telephone: 00 44(0)1132 034 522

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