The CLL Advocates Network Steering Committee is pleased to announce that registration is open for the 6th International CLL Horizons Conference, taking place from 11–13 September 2025 in Krakow, Poland.
Building on the success of previous years, CLL Horizons 2025 promises to deliver an engaging, impactful experience for CLL advocates from around the world. The conference will run from Thursday afternoon to Saturday lunchtime, following our familiar format with several exciting updates.
Access to XXI iwCLL meeting included! We are thrilled to share that your CLL Horizons registration now includes access to the main sessions of the XXI International Workshop on CLL (iwCLL), taking place in Krakow just after Horizons, from 12–15 September 2025.
This unique opportunity allows delegates to participate in both events during one trip, connecting with a broader audience of patient advocates, clinicians, researchers, and stakeholders from across the globe.
Important note: The CLL Horizons conference scholarship DOES NOT cover extra hotel nights required for iwCLL. These costs will be the responsibility of the delegate or their organisation.
Eligibility Criteria: To attend, you must:
Be a member of the CLL Advocates Network, or have an active advocacy/support role within a patient organisation or group that supports CLL/SLL patients
Be able to communicate in English
More information on the Scholarship Application, Conference Fee (if applicable), Travel Information, Visas, Venue & Accommodation, Call for Posters, and Abstract/Best Practice Session is available HERE.
We look forward to welcoming as many of you as possible to Krakow for this enriching and empowering global gathering of the CLL advocacy community.
Every 1 September, the global CLL community unites to raise awareness about CHRONIC LYMPHOCYTIC LEUKEMIA (CLL) and give those affected by a diagnosis of CLL a much needed-voice.
In 2025, the WCLLD campaign focuses on strengthening health literacy, raising awareness, and empowering better decision-making. We are calling on stakeholders, healthcare professionals, industry leaders, patients and advocates to unite and amplify our message.
Together, we can:
Promote health literacy, CLL awareness and timely intervention
Empower patients to seek the knowledge to inform their choices
Foster a global community of support and advocacy
Main tagline: Understand, Decide, Thrive
The campaign toolkit is now available for you to include in your communication plans.
Please spread the word and let other stakeholders and your clinical community know about World CLL Day and ask them for their active participation by building WCLLD into their communication plans!
World CLL Day is a great way of kicking off Blood Cancer Awareness Month for the CLL community. It will help build momentum for the CLL community on World Leukemia Day on 4 September and World Lymphoma Awareness Day on 15 September.
The group was originally founded as the MPN Patient Advocacy Group Thailand, with the aim of providing up-to-date, trustworthy information and support to patients living with myeloproliferative neoplasms (MPNs).
Over time, the group’s reach expanded organically as patients with other forms of leukemia, particularly Acute Myeloid Leukemia (AML), Acute Lymphoblastic Leukemia (ALL), and Chronic Lymphocytic Leukemia (CLL), began reaching out for support.
Today, they continue to lead efforts to expand awareness, improve understanding, and advocate for better care across all leukemia types, including CLL, in collaboration with trusted partners like the Thai Cancer Society.
The CLL Advocates Network (CLLAN) Steering Committee is pleased to announce that registration is now open for the 6th International CLL Horizons Conference,
Building on the success of previous conferences, the 2025 edition promises an engaging, impactful experience for all CLL advocates worldwide. CLL Horizons 2025 will run from Thursday afternoon to Saturday lunchtime, mirroring our familiar format — with a few exciting updates.
Theme: Understand, Decide, Thrive
The conference theme, aligned with World CLL Day 2025, will guide the flow of presentations, panel discussions, and interactive sessions. It will feature a distinguished faculty of clinical and advocacy leaders from around the globe. Attendees can expect engaging sessions that enhance foundational knowledge, empower patient-centered decision-making, and promote sustainable, long-term advocacy and well-being.
Conference program: Will be available soon
Registration details:
Delegate Eligibility Criteria
You are a member of CLL Advocates Network or have an active role in advocacy/support within a patient organisation/group that supports patients with CLL/SLL
You are able to communicate in English
Registration for the International CLL Horizons Conference will be available for up to two participants per organisation:
First Delegate: A full scholarship will be provided for the first delegate from the patient organisation who meets the eligibility criteria. The scholarship covers accommodation, flights and transfers, catering, a delegate conference pass, and attendance.
Second Delegate: The conference fee for a second delegate is 500 EUR. This fee will be waived upon submission of a best practice poster. The conference fee includes accommodation, catering, a delegate conference pass, and attendance. Please note that travel costs for the second delegate are not included.
You can find more details about the Scholarship Application HERE.
Visa Requirements – Immediate Action Required by 30th June Poland is part of the Schengen Area, and a Schengen visa is required for entry depending on your country of residence. If you need a visa to attend the conference, please complete your registration no later than 30 June 2025. Visa processing can take up to three months, and securing an embassy appointment can also take time. Delays in registration may result in not receiving your visa in time to attend. Once your registration is confirmed, the CLLAN team will promptly provide the documents needed for your application, including a formal invitation letter, hotel confirmation, and flight itinerary (if booked through us). We strongly encourage all participants who require a visa to register and begin the application process as early as possible.
Further details about the visa process are available HERE
Secure your spot at this exceptional event by registering NOW
Best Practices, Call to Action, and Poster Presentation:
Best Practices Session:
Participate in the Best Practice session where we will showcase your CLL support & advocacy initiative topics/examples.
We invite you to submit your abstracts by the end of July to be considered for presentation during this session.
The 6th CLL Horizons Conference will aim to successfully meet its objectives by bringing together a diverse group of stakeholders to explore and advance the understanding of CLL. The event is intended to fulfil its mission of fostering collaboration, enhancing knowledge sharing, and providing practical advocacy tools for attendees. A key feature of the conference will be the opportunity for participants to meet fellow advocates from around the world and exchange good practices, experiences, and strategies to strengthen the global CLL advocacy community.
Contact Information: For any questions or assistance, feel free to reach out to the CLL Horizons Organising Team at: CLLHZ@clladvocates.net
We look forward to meeting as many of you as possible in Krakow for an enriching and educational experience.
Every 1 September, the global CLL community unites to raise awareness about CHRONIC LYMPHOCYTIC LEUKEMIA (CLL) and give those affected by a diagnosis of CLL a much needed-voice. On World CLL Day we come together to improve understanding of the medical vulnerability of CLL patients and the challenges involved in living with CLL.
In 2025, WCLLD campaign focuses on strengthening health literacy, raising awareness, and empowering better decision-making. We are calling on stakeholders, healthcare professionals, industry leaders, patients and advocates to unite and amplify our message.
Together, we can:
Promote health literacy, CLL awareness and timely intervention
Empower patients to seek the knowledge to inform their choices
Foster a global community of support and advocacy
Main tagline: Understand, Decide, Thrive
Please spread the word and let other stakeholders and your clinical community know about World CLL Day and ask them for their active participation by building WCLLD into their communication plans!
For this year campaign updates and information of previous campaign themes please visit the World CLL Day page.
This 5-week online course is specifically designed for CLL, CML, Acute Leukemia, and MPN patient advocates and aims to empower you with the tools, communication techniques, and emotional insights needed to effectively support newly diagnosed patients and their families.
What will you learn? This course explores the emotional and psychological challenges newly diagnosed patients face and provides practical training in:
Understanding the patient and their family experience
Empathy, compassion, and communication principles
Listening skills and burnout prevention
Protocols for first interactions and ongoing support
Stress management for both patients and advocates
Best practices from experienced advocates
Watch & wait strategies and the power of language
The course begins on April 26 and runs until May 31, spanning a total of 5 weeks. It is delivered in English and requires a time commitment of approximately 7+ hours. Participants will also complete 2 video assignments as part of the course.
You can find detailed information about this course HERE.
The course is completely free of charge, but registration via registration form is required to enroll.
We highly recommend this course for anyone offering support to people living with CLL. This is a great opportunity to strengthen your advocacy skills, grow your confidence, and better serve our community.
CLLAN is a program partner and actively involved in course development.
A new patient guide from Johnson & Johnson, developed in collaboration with patient representatives from the CLL Advocates Network and with input from healthcare providers, is available now and offers, easily explained, much-needed and up to date support for people living with chronic lymphocytic leukaemia (CLL).
This digital resource focuses on Bruton’s tyrosine kinase inhibitors (BTKis) – a modern, targeted treatment that helps slow disease progression and improve quality of life.
BTKis may be used in the first-line or relapsed setting and can be given on their own or in combination with other anti-cancer medicines. They are usually taken once or twice daily as tablets for as long as the treatment is working. This guide explains how they work, what to expect during treatment, and how to manage side effects. It also highlights the importance of staying in touch with your healthcare team and caring for emotional wellbeing.
BTKi Treatment for CLL: A Patient Information Guide:
This resource will be useful for our member organisations to share with their patient community and will also offer value to individual patients with CLL and their care partners, who seek further information about BTKi treatments.
Clinicians are encouraged to share this guide with patients as a trusted resource that complements in-clinic discussions and helps individuals make informed decisions about their care.
CLL Horizons, the international conference of organisations representing people with CLL, is designed to build capacity in patient advocates and grow their skills on medical and advocacy topics. It is a unique opportunity for patient advocates and patient organisation representatives supporting CLL patients to:
Learn about the disease, treatments and latest research from leading doctors
Hear from fellow advocates on key topics, including awareness, education and drug access
Take part in sessions tailored to fit your organisation’s needs
Participate in the collaborative session between CLLAN and iwCLL (International Workshop on Chronic Lymphocytic Leukemia)
Meet and network with others doing similar work, giving them the opportunity to discuss issues facing CLL patients
Building on the success of previous conferences, we are now excited to announce that preparations for the 6th CLL Horizons Conference are underway. This will be a hybrid event offering those unable to travel a virtual opportunity to participate.
This year’s CLL Horizons will be hosted in Krakow, Poland, from 11–13 September. As with previous years, the event is designed to maximize collaboration opportunities between the CLL clinical research and patient advocacy communities. It will run alongside and partially overlap with the iwCLL – International Workshop on Chronic Lymphocytic Leukemia meeting.
Stay tuned for further details — the full agenda, conference registration, and logistics will soon be available on the CLLAN website. We’ll keep you updated with all the essential information to help you plan your participation in CLL Horizons 2025.
We are delighted to announce the pre-launch release of the global CLL Clinical Trials Hub, hosted by the CLL Advocates Network (CLLAN).
This innovative platform has been developed to simplify the process of discovering clinical trials for Chronic Lymphocytic Leukemia (CLL). It consolidates 30 different databases from a variety of countries. Search results give an overview of available clinical trials with a short description, recruitment status as well as inclusion and exclusion criteria. If more details are needed each result is linked to the source database where all available information about the respective clinical trial can be accessed. This includes locations, contact information and much more.
The Hub bas been designed to benefit patients, patient organisations, and healthcare providers alike. It serves as a vital resource for navigating available research opportunities. It is not intended as a substitute for medical consultation between patient and healthcare provider.
The CLL Advocates Network (CLLAN) Steering Committee successfully hosted the 5th International CLL Horizons Conference from September 27 to 29, 2024 in Barcelona, Spain.
This highly anticipated hybrid event brought together 85 delegates from 41 countries, along with virtual attendees, creating a truly global platform for discussion and collaboration on chronic lymphocytic leukemia (CLL).
For those who missed the event or wish to revisit key insights, recordings of all sessions are now available on the CLLANYouTube channel. The CLL Horizons 2024 playlist offers an opportunity for a wider audience to gain valuable knowledge and stay updated on the latest developments in CLL advocacy and treatment.
Medical Session: CLL diagnosis, active monitoring & associated dilemmas? Prof. Anna Schuh (UK)
Advocacy Session: 2023 Global Leukaemia Patient and Carer experience survey: CLL specific findings, report, unmet needs and prioritising recommendations for action Sarah Gunn (UK) & AJ Poots (UK)
Thank you all, and we look forward to continuing this journey together!
