Lymfoma a Leukémia Slovensko (Slovakia) is dedicated to supporting patients not only during treatment but also throughout recovery and beyond.
Their approach combines emotional, social, and practical support to ensure that no one has to face their journey alone. They provide peer-to-peer patient support and a buddy service, connecting individuals with others who share similar experiences. In addition, they offer economic and social advice, helping patients and their families navigate financial and daily life challenges that often arise alongside illness. Believing that information is one of the most important aspects of therapy, OZ Lymfóma a Leukémia Slovensko makes a sincere effort to introduce new topics and resources to keep patients informed and empowered.
Their work extends into the community through a variety of events and initiatives, including:
Regional and social gatherings
Summer educational and recreational stays
Christmas celebrations
Patient conferences and workshops
Participation as guests at medical conferences
Benefit concerts and other charitable activities
Through these activities, OZ Lymfóma a Leukémia Slovensko creates opportunities for education, connection, and emotional support. Their mission is rooted in compassion and the conviction that true recovery is not only medical but also social and human.
6th International CLL Horizons Conference, which took place from 11–13 September 2025 at the AC Hotel By Marriott Krakow in Krakow, Poland.
Building on the success of previous conferences, the 2025 edition delivered an engaging, impactful experience for CLL advocates worldwide. CLL Horizons 2025 ran from Thursday afternoon to Saturday lunchtime, mirroring the familiar format — with a few exciting updates.
Theme: Understand, Decide, Thrive The conference theme, aligned with World CLL Day 2025, guided the flow of presentations, panel discussions, and interactive sessions. It featured a distinguished faculty of clinical and advocacy leaders from around the globe. Attendees participated in engaging sessions that enhanced foundational knowledge, empowered patient-centered decision-making, and promoted sustainable, long-term advocacy and well-being.
Day 1 (Thursday 11th September) photo album can be found HERE
Day 2 (Friday 12th September) photo album can be found HERE
Day 3 (Saturday 13th September) photo album can be found HERE
The Conference successfully met its objectives by bringing together a diverse group of stakeholders to explore and advance the understanding of CLL. The event fulfilled its mission of fostering collaboration, enhancing knowledge sharing, and providing practical advocacy tools for attendees. A key feature of the conference was the opportunity for participants to meet fellow advocates from around the world and exchange good practices, experiences, and strategies to strengthen the global CLL advocacy community.
We look forward to seeing you again at the next CLL Horizons conference!
Acknowledgments
We would like to thank the following for their event grant support:
The opening day of CLL Horizons 2025 in Krakow began with energy and anticipation. After a warm welcome lunch, participants gathered for the opening plenary where the CLL Advocates Network outlined the latest progress and upcoming initiatives. The message was clear: global collaboration is driving real change in chronic lymphocytic leukemia (CLL) advocacy, from new reports to practical tools that support patients and their families.
The Understand theme framed the afternoon sessions. A reimagined “CLL 101” session emphasized the importance of connecting scientific knowledge with advocacy and patient experiences. Rather than presenting science in isolation, discussions highlighted how diagnosis, treatment pathways, and advocacy strategies must come together to empower informed care across diverse healthcare settings.
Throughout the day, quality of life was a recurring focus. Participants explored how advocates can play a pivotal role in ensuring treatment side effects are not overlooked and that patients’ voices shape care decisions. The value of data in advocacy was also emphasized, showing how real-world experiences can inform policy, influence access to treatment, and ensure the patient perspective remains central.
Emotional well-being featured prominently, with sessions on psychological resilience, communication, and navigating the complex systems of healthcare access. Advocates were reminded that strengthening trust and addressing barriers—whether cultural, emotional, or systemic—are crucial to improving outcomes.
The day concluded with a vibrant poster session followed by dinner, offering participants an opportunity to connect, share experiences, and reflect on the day’s discussions. By evening, there was a clear sense that this gathering would not only inform but also inspire action.
We would like to thank the following for their event grant support:
The Carita Foundation has been operating since 2010, supporting patients in gaining access to modern treatment methods.
They provide education about diseases and patient rights, offer support to patients and their families, and advocate for the introduction of new therapies in Poland.
They organize regular integration meetings, workshops, and conferences with the participation of experts from across the country.
They promote a healthy lifestyle through initiatives such as the cycling event “Ride for Health”, which for the past five years has brought together patients, their loved ones, healthcare professionals, and decision-makers.
The Foundation is a non-governmental organization working with national and international partners and is a member of umbrella organizations
To learn more about Carita Foundation in Memory of Wiesława Adamiec, please visit their website HERE.
Every 1 September, the global CLL community unites to raise awareness about CHRONIC LYMPHOCYTIC LEUKEMIA (CLL) and give those affected by a diagnosis of CLL a much needed-voice.
In 2025, the WCLLD campaign focuses on strengthening health literacy, raising awareness, and empowering better decision-making. We are calling on stakeholders, healthcare professionals, industry leaders, patients and advocates to unite and amplify our message.
Together, we can:
Promote health literacy, CLL awareness and timely intervention
Empower patients to seek the knowledge to inform their choices
Foster a global community of support and advocacy
Main tagline: Understand, Decide, Thrive
The campaign toolkit is now available for you to include in your communication plans.
Please spread the word and let other stakeholders and your clinical community know about World CLL Day and ask them for their active participation by building WCLLD into their communication plans!
World CLL Day is a great way of kicking off Blood Cancer Awareness Month for the CLL community. It will help build momentum for the CLL community on World Leukemia Day on 4 September and World Lymphoma Awareness Day on 15 September.
The group was originally founded as the MPN Patient Advocacy Group Thailand, with the aim of providing up-to-date, trustworthy information and support to patients living with myeloproliferative neoplasms (MPNs).
Over time, the group’s reach expanded organically as patients with other forms of leukemia, particularly Acute Myeloid Leukemia (AML), Acute Lymphoblastic Leukemia (ALL), and Chronic Lymphocytic Leukemia (CLL), began reaching out for support.
Today, they continue to lead efforts to expand awareness, improve understanding, and advocate for better care across all leukemia types, including CLL, in collaboration with trusted partners like the Thai Cancer Society.
The CLL Advocates Network (CLLAN) Steering Committee is pleased to announce that registration is now open for the 6th International CLL Horizons Conference,
Building on the success of previous conferences, the 2025 edition promises an engaging, impactful experience for all CLL advocates worldwide. CLL Horizons 2025 will run from Thursday afternoon to Saturday lunchtime, mirroring our familiar format — with a few exciting updates.
Theme: Understand, Decide, Thrive
The conference theme, aligned with World CLL Day 2025, will guide the flow of presentations, panel discussions, and interactive sessions. It will feature a distinguished faculty of clinical and advocacy leaders from around the globe. Attendees can expect engaging sessions that enhance foundational knowledge, empower patient-centered decision-making, and promote sustainable, long-term advocacy and well-being.
Conference program: Will be available soon
Registration details:
Delegate Eligibility Criteria
You are a member of CLL Advocates Network or have an active role in advocacy/support within a patient organisation/group that supports patients with CLL/SLL
You are able to communicate in English
Registration for the International CLL Horizons Conference will be available for up to two participants per organisation:
First Delegate: A full scholarship will be provided for the first delegate from the patient organisation who meets the eligibility criteria. The scholarship covers accommodation, flights and transfers, catering, a delegate conference pass, and attendance.
Second Delegate: The conference fee for a second delegate is 500 EUR. This fee will be waived upon submission of a best practice poster. The conference fee includes accommodation, catering, a delegate conference pass, and attendance. Please note that travel costs for the second delegate are not included.
You can find more details about the Scholarship Application HERE.
Visa Requirements – Immediate Action Required by 30th June Poland is part of the Schengen Area, and a Schengen visa is required for entry depending on your country of residence. If you need a visa to attend the conference, please complete your registration no later than 30 June 2025. Visa processing can take up to three months, and securing an embassy appointment can also take time. Delays in registration may result in not receiving your visa in time to attend. Once your registration is confirmed, the CLLAN team will promptly provide the documents needed for your application, including a formal invitation letter, hotel confirmation, and flight itinerary (if booked through us). We strongly encourage all participants who require a visa to register and begin the application process as early as possible.
Further details about the visa process are available HERE
Secure your spot at this exceptional event by registering NOW
Best Practices, Call to Action, and Poster Presentation:
Best Practices Session:
Participate in the Best Practice session where we will showcase your CLL support & advocacy initiative topics/examples.
We invite you to submit your abstracts by the end of July to be considered for presentation during this session.
The 6th CLL Horizons Conference will aim to successfully meet its objectives by bringing together a diverse group of stakeholders to explore and advance the understanding of CLL. The event is intended to fulfil its mission of fostering collaboration, enhancing knowledge sharing, and providing practical advocacy tools for attendees. A key feature of the conference will be the opportunity for participants to meet fellow advocates from around the world and exchange good practices, experiences, and strategies to strengthen the global CLL advocacy community.
Contact Information: For any questions or assistance, feel free to reach out to the CLL Horizons Organising Team at: CLLHZ@clladvocates.net
We look forward to meeting as many of you as possible in Krakow for an enriching and educational experience.
Every 1 September, the global CLL community unites to raise awareness about CHRONIC LYMPHOCYTIC LEUKEMIA (CLL) and give those affected by a diagnosis of CLL a much needed-voice. On World CLL Day we come together to improve understanding of the medical vulnerability of CLL patients and the challenges involved in living with CLL.
In 2025, WCLLD campaign focuses on strengthening health literacy, raising awareness, and empowering better decision-making. We are calling on stakeholders, healthcare professionals, industry leaders, patients and advocates to unite and amplify our message.
Together, we can:
Promote health literacy, CLL awareness and timely intervention
Empower patients to seek the knowledge to inform their choices
Foster a global community of support and advocacy
Main tagline: Understand, Decide, Thrive
Please spread the word and let other stakeholders and your clinical community know about World CLL Day and ask them for their active participation by building WCLLD into their communication plans!
For this year campaign updates and information of previous campaign themes please visit the World CLL Day page.
This 5-week online course is specifically designed for CLL, CML, Acute Leukemia, and MPN patient advocates and aims to empower you with the tools, communication techniques, and emotional insights needed to effectively support newly diagnosed patients and their families.
What will you learn? This course explores the emotional and psychological challenges newly diagnosed patients face and provides practical training in:
Understanding the patient and their family experience
Empathy, compassion, and communication principles
Listening skills and burnout prevention
Protocols for first interactions and ongoing support
Stress management for both patients and advocates
Best practices from experienced advocates
Watch & wait strategies and the power of language
The course begins on April 26 and runs until May 31, spanning a total of 5 weeks. It is delivered in English and requires a time commitment of approximately 7+ hours. Participants will also complete 2 video assignments as part of the course.
You can find detailed information about this course HERE.
The course is completely free of charge, but registration via registration form is required to enroll.
We highly recommend this course for anyone offering support to people living with CLL. This is a great opportunity to strengthen your advocacy skills, grow your confidence, and better serve our community.
CLLAN is a program partner and actively involved in course development.
A new patient guide from Johnson & Johnson, developed in collaboration with patient representatives from the CLL Advocates Network and with input from healthcare providers, is available now and offers, easily explained, much-needed and up to date support for people living with chronic lymphocytic leukaemia (CLL).
This digital resource focuses on Bruton’s tyrosine kinase inhibitors (BTKis) – a modern, targeted treatment that helps slow disease progression and improve quality of life.
BTKis may be used in the first-line or relapsed setting and can be given on their own or in combination with other anti-cancer medicines. They are usually taken once or twice daily as tablets for as long as the treatment is working. This guide explains how they work, what to expect during treatment, and how to manage side effects. It also highlights the importance of staying in touch with your healthcare team and caring for emotional wellbeing.
BTKi Treatment for CLL: A Patient Information Guide:
This resource will be useful for our member organisations to share with their patient community and will also offer value to individual patients with CLL and their care partners, who seek further information about BTKi treatments.
Clinicians are encouraged to share this guide with patients as a trusted resource that complements in-clinic discussions and helps individuals make informed decisions about their care.
