Category: Uncategorised

Registration for the “Interaction with newly-diagnosed patients” course enrolment is now OPEN

Posted on by Admin Coordination

Dear CLLAN members and friends,

The Blood Cancer Patient Advocates Academy has opened registration for its latest free online course: Interaction with Newly Diagnosed Patients.

This 5-week online course is specifically designed for CLL, CML, Acute Leukemia, and MPN patient advocates and aims to empower you with the tools, communication techniques, and emotional insights needed to effectively support newly diagnosed patients and their families.

What will you learn?
This course explores the emotional and psychological challenges newly diagnosed patients face and provides practical training in:

  • Understanding the patient and their family experience
  • Empathy, compassion, and communication principles
  • Listening skills and burnout prevention
  • Protocols for first interactions and ongoing support
  • Stress management for both patients and advocates
  • Best practices from experienced advocates
  • Watch & wait strategies and the power of language

The course begins on April 26 and runs until May 31, spanning a total of 5 weeks. It is delivered in English and requires a time commitment of approximately 7+ hours. Participants will also complete 2 video assignments as part of the course. 

You can find detailed information about this course HERE.

The course is completely free of charge, but registration via registration form is required to enroll.

REGISTER HERE

We highly recommend this course for anyone offering support to people living with CLL. This is a great opportunity to strengthen your advocacy skills, grow your confidence, and better serve our community.

CLLAN is a program partner and actively involved in course development.

Let’s continue learning and growing – together!

Proudly welcoming another new member: The CLLAN now counts 45 members from 36 countries!

Posted on by Admin Coordination

We are proud to welcome a new member to our network! Please join us in welcoming our first Estonian member Eesti Leukeemia- ja Lümfoomihaigete Liit (ELLL), Estonian Leukaemia and Lymphoma Patients’ Societ to this big family!

The Estonian Leukaemia and Lymphoma Patients’ Society (ELLL) unites the patients, their carers and medical staff of the malignancies of the blood (i.e. leukaemias, lymphomas, myelomas and other myeloprolofic diseases). It represents > 20 members or patients with CLL.

To learn more about ELLL, please their profile in our members section.

The CLL Advocates Network now counts 45 members from 36 countries!

Click here to see our full list of members.

Welcome to our newest member: The CLLAN now counts 44 members from 35 countries!

Posted on by Nicole [Germany]

We are proud to welcome a new member to our network! Please join us in welcoming our first Australian member Leukaemia Foundation of Australia to this big family!

The CLL Advocates Network and the Leukaemia Foundation of Australia have a long tradition of friendship and cooperation but have only now formalized their relationship. We look forward to continue working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes.

The CLL Advocates Network now counts 44 members from 35 countries! Click here to see our full list of members.

CLL HORIZONS 2021 RECORDINGS NOW PUBLICLY AVAILABLE

Posted on by Nicole [Germany]

CLL Horizons, the annual conference of the CLL patient advocacy community, is designed to build capacity in patient advocates and grow their skills on medical and advocacy topics. The 4th CLL Horizons Conference (CLLHZ 2021) was held from 5-7 November 2021 in a fully virtual format. More than 130 participants from 40 countries joined the event.

Renowned experts and speakers from different parts of the world offered interesting medical and advocacy sessions, supporting interactive panel sessions.

Session recordings have been available to registered participants on the conference platform BUT ARE NOW ALSO AVAILABLE HERE!

For more information on CLL Horizons 2021 and to access sessions of previous Horizons Conferences, please CLICK HERE

Don´t miss our webinar on “Latest updates on CLL and what this means for you”

Posted on by Nicole [Germany]

This webinar is aimed at patients and advocates to provide an overview of latest developments in the treatment of CLL that were presented at The American Society of Haematology (ASH) Conference in Georgia, US, December 2021

We will be joined by:

  • Dr Piers Patten – Consultant Haematologist and Senior Lecturer, Kings College Hospital NHS Foundation Trust

This webinar is scheduled for 10 February 2022 at 3:30 pm GMT / 16:30 CET and is being organised as a collaboration between the Chronic Lymphocytic Leukaemia Advocates Network and Leukaemia Care.

Please click here to register: https://us02web.zoom.us/webinar/register/WN_Gn_XT8nMRL6Y-Qy0Jsz-Lw

The CLLAN welcomes a new supporting member and now counts 42 members from 34 countries!

Posted on by Nicole [Germany]

We are proud to welcome a new member to our network! Please join us in welcoming our second official “supporter”, Dr. Vasile Musteata from Moldavia. Welcome, Dr. Musteata, to this big family! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 42 members from 34 countries! Click here to see our full list of members.

Welcome to our newest member: CLLAN now counts 41 members from 33 countries!

Posted on by Nicole [Germany]

We are proud to welcome a new member to our network! Please join us in welcoming our first Belgian member Lymfklierkanker Vereniging Vlaanderen vzw (LVV) / Lymphoma Association Flanders to this big family! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 41 members from 33 countries! Click here to see our full list of members.

Recommended WECAN resources – check them out!

Posted on by Nicole [Germany]

In April 2020 the CLL Advocates Network became a member of WECAN, the Workgroup of European Cancer Patient Advocacy Networks, and informal workgroup of leaders of the 24 pan-European cancer patient umbrella organisations.

In the WECAN section of this website you will now find a plethora of useful resources, among these:

  • the Patients in Publications Training Course
  • the Virtual Meetings Resource Center
  • the WECAN Academy Knowledge Base and
  • WECAN´s Guiding Principles for Reasonable Legal Agreements.

For more information on WECAN please visit https://www.clladvocates.net/program/wecan/ or go to the WECAN website at https://wecanadvocate.eu/

Welcome to our three newest members: CLLAN now counts 40 members from 32 countries!

Posted on by Nicole [Germany]

We are proud to welcome three new members to our network! Please join us in welcoming Mercy Bridge (Russia), Fundación Esperanza Viva (Colombia) and Campaigning4Cancer (South Africa)! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 40 members from 32 countries! Click here to see our full list of members.