Nicole Schröter, a valued colleague, is leaving her position as Project Manager at CLL Advocates Network (CLLAN) after four years of dedicated service. We bid her farewell with heavy hearts as she embarks on a new chapter in her career.

Nicole joined CLLAN in March 2020, bringing valuable experience and professionalism. As CLLAN Project Manager, she played a key role in keeping the network running smoothly and coordinating tasks effectively. From managing communication among Steering Committee members to building partnerships with our members and other networks, Nicole led many successful CLLAN projects. Her careful attention to detail and excellent organisational skills have been crucial in achieving CLLAN’s goals.

On behalf of CLL Advocates Network, we thank Nicole sincerely and wish her all the best in her future endeavours. 

We are proud to welcome a new member to our network! Please join us in welcoming our first Estonian member Eesti Leukeemia- ja Lümfoomihaigete Liit (ELLL), Estonian Leukaemia and Lymphoma Patients’ Societ to this big family!

The Estonian Leukaemia and Lymphoma Patients’ Society (ELLL) unites the patients, their carers and medical staff of the malignancies of the blood (i.e. leukaemias, lymphomas, myelomas and other myeloprolofic diseases). It represents > 20 members or patients with CLL.

To learn more about ELLL, please their profile in our members section.

The CLL Advocates Network now counts 45 members from 36 countries!

Click here to see our full list of members.

CLL Horizons, the annual conference of the CLL patient advocacy community, is designed to build capacity in patient advocates and grow their skills on medical and advocacy topics. The 4th CLL Horizons Conference (CLLHZ 2021) was held from 5-7 November 2021 in a fully virtual format. More than 130 participants from 40 countries joined the event.

Renowned experts and speakers from different parts of the world offered interesting medical and advocacy sessions, supporting interactive panel sessions.

Session recordings have been available to registered participants on the conference platform BUT ARE NOW ALSO AVAILABLE HERE!

For more information on CLL Horizons 2021 and to access sessions of previous Horizons Conferences, please CLICK HERE

This webinar is aimed at patients and advocates to provide an overview of latest developments in the treatment of CLL that were presented at The American Society of Haematology (ASH) Conference in Georgia, US, December 2021

We will be joined by:

• Dr Piers Patten – Consultant Haematologist and Senior Lecturer, Kings College Hospital NHS Foundation Trust

This webinar is scheduled for 10 February 2022 at 3:30 pm GMT / 16:30 CET and is being organised as a collaboration between the Chronic Lymphocytic Leukaemia Advocates Network and Leukaemia Care.

Please click here to register: https://us02web.zoom.us/webinar/register/WN_Gn_XT8nMRL6Y-Qy0Jsz-Lw

We are launching this new scribble video which explains what CLL is, what the typical signs and symptoms are, and why early diagnosis matters. The video is now available on our YouTube channel – check it out!

In April 2020 the CLL Advocates Network became a member of WECAN, the Workgroup of European Cancer Patient Advocacy Networks, and informal workgroup of leaders of the 24 pan-European cancer patient umbrella organisations.

In the WECAN section of this website you will now find a plethora of useful resources, among these:

• the Patients in Publications Training Course

• the Virtual Meetings Resource Center

• the WECAN Academy Knowledge Base and

• WECAN´s Guiding Principles for Reasonable Legal Agreements.

For more information on WECAN please visit https://www.clladvocates.net/program/wecan/ or go to the WECAN website at https://wecanadvocate.eu/