Registration is now open – Join us for the 5th “CLL Horizons: Learn. Share. Grow” Hybrid Conference

DATE: 27th – 29th September 2024
LOCATION: Barcelona, Spain

The CLL Advocates Network (CLLAN) Steering Committee is pleased to announce the 5th International CLL Horizons Conference, a hybrid event scheduled for 27th – 29th September in the stunning city of Barcelona, Spain. 

Registration is now openCLICK HERE TO REGISTER

Event Details:

  • Date: 27th – 29th September 2024
  • Location: Barcelona, Spain

The CLL Advocates Network (CLLAN) Steering Committee is thrilled to announce the return of our highly anticipated in-person event after the pandemic hiatus. Our 5th conference promises a blend of in-person and virtual experiences, offering the dynamic setting of Barcelona, Spain.

What to Expect:
Comprehensive Workshops and Sessions:

  • Engage in a variety of foundational learning and advocacy workshops tailored to enhance your skills and knowledge. Participate in sessions on evidence generation, digital communication strategies, and the Leukemia Patient Advocates Academy.

Expert-led Medical Discussions:

  • Join comprehensive medical sessions led by leading hematologists, supportive care specialists and HCP’s 
  • Explore topics such as CLL diagnosis, active monitoring, personalised treatment approaches, and the latest study information.
  • Engage in panel discussions on the current treatment landscape of CLL, including first-line treatments, re-treatment options, and new frontiers in CLL.

Networking and Social Events:

  • Connect with fellow advocates, experts, and professionals during networking sessions and social gatherings.
  • Attend the CLL Horizons 2024 Grand Opening, featuring welcome remarks, a 10-year anniversary reflection, and updates on CLLAN projects and strategic plans.
  • Join us for a dedicated poster presentation session, providing an opportunity to explore innovative research and projects presented by your peers.
  • Engage with the presenters during the networking time, ask questions, and discuss the implications of their findings on patient advocacy and care.
  • This session is an excellent opportunity to gain new perspectives, exchange ideas, and foster collaborations with other advocates and experts in the field.

Best Practices, Call to Action, and Poster Presentation:

  • Best Practices Session:
    • Participate in the Best Practice session where we will showcase your CLL support & advocacy initiative topics/examples.
    • We invite you to submit your abstracts by the end of July to be considered for presentation during this session.
    • Abstract application form is available HERE
  • Poster Presentation:
    • Please note that for your second delegate to qualify for a conference fee waiver, you must submit a poster.
    • You will find the poster template HERE.
    • We encourage you to utilise this template for your submissions.

Hybrid Experience:
Choose to attend in person in Barcelona or virtually from your home. Network with CLL advocacy leaders worldwide, exchange ideas, and form collaborations that transcend borders, contributing to the success of your organisation.

Draft Agenda: 
You can view draft agenda HERE,

Faculty and Speakers:
The conference faculty of esteemed speakers and moderators have been selected to include leading advocates and clinical experts speakers from around the globe, ensuring representation and sharing of expertise and information relevant to advocacy and CLL support developments in all countries. The clinical faculty of expert speakers include: Prof Anna Schuh (UK), Prof Arnon Kater (NL), Prof Barbara Eichhorst (DE), Prof Florence Cymbalista (FR), Prof Norah Akinola (NG), Dr Miguel Pavlovsky (AR), Prof Kostas Stamatopoulos (EL), Prof Paolo Ghia (IT), Dr Lydia Scarfo (IT), Prof Tahla Munir (UK), Prof William Wierda (US) and Dr Christina Karamanidou (EL).

Registration Details:
Delegate Eligibility Criteria

  • You are a member of CLL Advocates Network or have an active role in advocacy/support within a patient organisation/group that supports patients with CLL/SLL
  • You are able to communicate in English

Registration for the International CLL Horizons Conference will be available for up to two participants per organisation.

First Delegate: A full scholarship will be provided for the first delegate from the patient organisation who meets the eligibility criteria. The scholarship covers: accommodation, flights and transfers, catering, delegate conference pass and attendance.

Second Delegate: For a second delegate, the conference fee is 500 EUR. This will be waived upon submission of a best practise poster abstract. The conference fee covers: accommodation, catering, delegate conference pass and attendance. Second delegate travel costs are not included.

You can find more details about the Scholarship Application HERE.

Registration: Secure your spot at this exceptional event by registering early. Visit our website www.clladvocates.net/cll-horizons-2024/ for further details and more information.

Important Visa Information:
Spain is part of the EU and requires a Schengen Visa. If you need a visa, kindly complete your registration by 15th July 2024. This early registration deadline is crucial for timely visa appointments and document processing. You can find more details about the visa application HERE.

Contact Information:
For any questions or assistance, feel free to reach out to CLL Horizons 2024 team at: CLLHZ@clladvocates.net

We eagerly anticipate the opportunity to meet as many of you as possible in Barcelona, for an enriching and educative experience.

Warm regards,
Nick York, Chair of CLL Advocates Network on behalf of the CLLAN Steering Committee

Saying farewell to our dear colleague Nicole Schroter!

Nicole Schröter, a valued colleague, is leaving her position as Project Manager at CLL Advocates Network (CLLAN) after four years of dedicated service. We bid her farewell with heavy hearts as she embarks on a new chapter in her career.

Nicole joined CLLAN in March 2020, bringing valuable experience and professionalism. As CLLAN Project Manager, she played a key role in keeping the network running smoothly and coordinating tasks effectively. From managing communication among Steering Committee members to building partnerships with our members and other networks, Nicole led many successful CLLAN projects. Her careful attention to detail and excellent organisational skills have been crucial in achieving CLLAN’s goals.

On behalf of CLL Advocates Network, we thank Nicole sincerely and wish her all the best in her future endeavours. 

Save the date for World CLL Day 2024 and become involved!

Chronic lymphocytic leukemia (CLL) is a type of cancer of the blood and bone marrow. It is the most common leukemia in adults.

Every 1 September, the global CLL community unites to raise awareness about chronic lymphocytic leukemia (CLL) and give those affected by a diagnosis of CLL a much needed voice. On World CLL Day we come together to share resources to improve understanding of the life of those affected by a diagnosis of CLL. World CLL day offer opportunities to share information and initiatives to improve their quality of life, experience and outcomes.

For this year campaign updates and information of previous campaign themes please visit the World CLL Day page.

Campaign materials are designed and created in different languages with a communication plan to help all those effected by diagnosis (CLL patients and their loved ones, all stakeholders, CLLAN members and campaign supporters) to get involved and prepare their own communications plan in the run-up to World CLL Day and shape their own activities. These will be made available on the campaign website in due course.

Save the date for World CLL Day 2024 and become involved!

While the organising committee continues preparations for the central 2024 campaign theme, we will welcome your early involvement as we shape this campaign together. As the campaign develops we will keep everyone updated directly by communication channels and through campaign website.

We wish to thank all for your support to ensure World CLL Day is as impactful, meaningful and memorable as possible to improve patients’ outcomes, and we look forward to working and campaigning together in 2024. 

Please contact us at info@clladvocates.net if you or your organisation wishes to be involved during the early planning stages.

Proudly welcoming another new member: The CLLAN now counts 45 members from 36 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our first Estonian member Eesti Leukeemia- ja Lümfoomihaigete Liit (ELLL), Estonian Leukaemia and Lymphoma Patients’ Societ to this big family!

The Estonian Leukaemia and Lymphoma Patients’ Society (ELLL) unites the patients, their carers and medical staff of the malignancies of the blood (i.e. leukaemias, lymphomas, myelomas and other myeloprolofic diseases). It represents > 20 members or patients with CLL.

To learn more about ELLL, please their profile in our members section.

The CLL Advocates Network now counts 45 members from 36 countries!

Click here to see our full list of members.

Welcome to our newest member: The CLLAN now counts 44 members from 35 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our first Australian member Leukaemia Foundation of Australia to this big family!

The CLL Advocates Network and the Leukaemia Foundation of Australia have a long tradition of friendship and cooperation but have only now formalized their relationship. We look forward to continue working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes.

The CLL Advocates Network now counts 44 members from 35 countries! Click here to see our full list of members.

CLL HORIZONS 2021 RECORDINGS NOW PUBLICLY AVAILABLE

CLL Horizons, the annual conference of the CLL patient advocacy community, is designed to build capacity in patient advocates and grow their skills on medical and advocacy topics. The 4th CLL Horizons Conference (CLLHZ 2021) was held from 5-7 November 2021 in a fully virtual format. More than 130 participants from 40 countries joined the event.

Renowned experts and speakers from different parts of the world offered interesting medical and advocacy sessions, supporting interactive panel sessions.

Session recordings have been available to registered participants on the conference platform BUT ARE NOW ALSO AVAILABLE HERE!

For more information on CLL Horizons 2021 and to access sessions of previous Horizons Conferences, please CLICK HERE

Don´t miss our webinar on “Latest updates on CLL and what this means for you”

This webinar is aimed at patients and advocates to provide an overview of latest developments in the treatment of CLL that were presented at The American Society of Haematology (ASH) Conference in Georgia, US, December 2021

We will be joined by:

  • Dr Piers Patten – Consultant Haematologist and Senior Lecturer, Kings College Hospital NHS Foundation Trust

This webinar is scheduled for 10 February 2022 at 3:30 pm GMT / 16:30 CET and is being organised as a collaboration between the Chronic Lymphocytic Leukaemia Advocates Network and Leukaemia Care.

Please click here to register: https://us02web.zoom.us/webinar/register/WN_Gn_XT8nMRL6Y-Qy0Jsz-Lw

The CLLAN welcomes a new supporting member and now counts 42 members from 34 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our second official “supporter”, Dr. Vasile Musteata from Moldavia. Welcome, Dr. Musteata, to this big family! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 42 members from 34 countries! Click here to see our full list of members.

Welcome to our newest member: CLLAN now counts 41 members from 33 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our first Belgian member Lymfklierkanker Vereniging Vlaanderen vzw (LVV) / Lymphoma Association Flanders to this big family! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 41 members from 33 countries! Click here to see our full list of members.