Save the date for World CLL Day 2024 and become involved!

Chronic lymphocytic leukemia (CLL) is a type of cancer of the blood and bone marrow. It is the most common leukemia in adults.

Every 1 September, the global CLL community unites to raise awareness about chronic lymphocytic leukemia (CLL) and give those affected by a diagnosis of CLL a much needed voice. On World CLL Day we come together to share resources to improve understanding of the life of those affected by a diagnosis of CLL. World CLL day offer opportunities to share information and initiatives to improve their quality of life, experience and outcomes.

For this year campaign updates and information of previous campaign themes please visit the World CLL Day page.

Campaign materials are designed and created in different languages with a communication plan to help all those effected by diagnosis (CLL patients and their loved ones, all stakeholders, CLLAN members and campaign supporters) to get involved and prepare their own communications plan in the run-up to World CLL Day and shape their own activities. These will be made available on the campaign website in due course.

Save the date for World CLL Day 2024 and become involved!

While the organising committee continues preparations for the central 2024 campaign theme, we will welcome your early involvement as we shape this campaign together. As the campaign develops we will keep everyone updated directly by communication channels and through campaign website.

We wish to thank all for your support to ensure World CLL Day is as impactful, meaningful and memorable as possible to improve patients’ outcomes, and we look forward to working and campaigning together in 2024. 

Please contact us at info@clladvocates.net if you or your organisation wishes to be involved during the early planning stages.

Proudly welcoming another new member: The CLLAN now counts 45 members from 36 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our first Estonian member Eesti Leukeemia- ja Lümfoomihaigete Liit (ELLL), Estonian Leukaemia and Lymphoma Patients’ Societ to this big family!

The Estonian Leukaemia and Lymphoma Patients’ Society (ELLL) unites the patients, their carers and medical staff of the malignancies of the blood (i.e. leukaemias, lymphomas, myelomas and other myeloprolofic diseases). It represents > 20 members or patients with CLL.

To learn more about ELLL, please their profile in our members section.

The CLL Advocates Network now counts 45 members from 36 countries!

Click here to see our full list of members.

Welcome to our newest member: The CLLAN now counts 44 members from 35 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our first Australian member Leukaemia Foundation of Australia to this big family!

The CLL Advocates Network and the Leukaemia Foundation of Australia have a long tradition of friendship and cooperation but have only now formalized their relationship. We look forward to continue working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes.

The CLL Advocates Network now counts 44 members from 35 countries! Click here to see our full list of members.

CLL HORIZONS 2021 RECORDINGS NOW PUBLICLY AVAILABLE

CLL Horizons, the annual conference of the CLL patient advocacy community, is designed to build capacity in patient advocates and grow their skills on medical and advocacy topics. The 4th CLL Horizons Conference (CLLHZ 2021) was held from 5-7 November 2021 in a fully virtual format. More than 130 participants from 40 countries joined the event.

Renowned experts and speakers from different parts of the world offered interesting medical and advocacy sessions, supporting interactive panel sessions.

Session recordings have been available to registered participants on the conference platform BUT ARE NOW ALSO AVAILABLE HERE!

For more information on CLL Horizons 2021 and to access sessions of previous Horizons Conferences, please CLICK HERE

Don´t miss our webinar on “Latest updates on CLL and what this means for you”

This webinar is aimed at patients and advocates to provide an overview of latest developments in the treatment of CLL that were presented at The American Society of Haematology (ASH) Conference in Georgia, US, December 2021

We will be joined by:

  • Dr Piers Patten – Consultant Haematologist and Senior Lecturer, Kings College Hospital NHS Foundation Trust

This webinar is scheduled for 10 February 2022 at 3:30 pm GMT / 16:30 CET and is being organised as a collaboration between the Chronic Lymphocytic Leukaemia Advocates Network and Leukaemia Care.

Please click here to register: https://us02web.zoom.us/webinar/register/WN_Gn_XT8nMRL6Y-Qy0Jsz-Lw

The CLLAN welcomes a new supporting member and now counts 42 members from 34 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our second official “supporter”, Dr. Vasile Musteata from Moldavia. Welcome, Dr. Musteata, to this big family! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 42 members from 34 countries! Click here to see our full list of members.

Welcome to our newest member: CLLAN now counts 41 members from 33 countries!

We are proud to welcome a new member to our network! Please join us in welcoming our first Belgian member Lymfklierkanker Vereniging Vlaanderen vzw (LVV) / Lymphoma Association Flanders to this big family! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 41 members from 33 countries! Click here to see our full list of members.

Recommended WECAN resources – check them out!

In April 2020 the CLL Advocates Network became a member of WECAN, the Workgroup of European Cancer Patient Advocacy Networks, and informal workgroup of leaders of the 24 pan-European cancer patient umbrella organisations.

In the WECAN section of this website you will now find a plethora of useful resources, among these:

  • the Patients in Publications Training Course
  • the Virtual Meetings Resource Center
  • the WECAN Academy Knowledge Base and
  • WECAN´s Guiding Principles for Reasonable Legal Agreements.

For more information on WECAN please visit https://www.clladvocates.net/program/wecan/ or go to the WECAN website at https://wecanadvocate.eu/

Welcome to our three newest members: CLLAN now counts 40 members from 32 countries!

We are proud to welcome three new members to our network! Please join us in welcoming Mercy Bridge (Russia), Fundación Esperanza Viva (Colombia) and Campaigning4Cancer (South Africa)! We look forward to working with you in the fight against CLL, in enhancing CLL patient care and improving outcomes. The CLL Advocates Network now counts 40 members from 32 countries! Click here to see our full list of members.