CLLAN 2021 Survey Report and Recommendations now available!
We are pleased to announce that our 2021 survey report “Resource Mapping and Unmet Needs Survey: Service Provision and Impact of COVID-19” is now published and released on our website.
The report helps inform the CLL Advocates Network´s strategy to continue to support the needs of our global community and areas to improve outcomes for people living with Chronic Lymphocytic Leukemia (CLL).
We’re grateful to the 57 organisations representing 40 countries globally who participated in the survey and provide support to people living with CLL. This participation from diverse cultures, economies, and health systems, provides CLL Advocates Network with insights to support our global network.
This survey has identified gaps in service provision and how this differs across organisations and between different countries across the globe. There is clearly, from the responses provided to this survey, a deficit in services particularly for patients in low-and-middle-income countries (LMIC).
As with many aspects of healthcare, a collaborative approach that encompasses the perspective of patients and carers alongside the work of researchers, support organisations, healthcare providers, pharmaceutical companies and wider policy makers will be the most progressive route to make lasting changes. These changes will ultimately save lives.
We wish to thank all those groups that took the time to complete this survey and for helping identify advocacy needs of worldwide organisations providing support to CLL patients and sharing good practice. The above reports are YOUR reports! Thank you for contributing to these important pieces of evidence!