AEAL – Asociación Española de Afectados por Linfoma, Mieloma y Leucemia (Spain)
Email
WebsiteScope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
AEAL, Asociación Española de Afectados por Linfoma, Mieloma y Leucemia, was founded by patients on 8 October 2002. The objectives of AEAL are education, information and support for those affected by oncohematological diseases.
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served