Ail Pazienti (Italy)


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
AIL promotes and supports scientific research for the treatment of leukaemia, lymphoma and myeloma; it assists patients and families by accompanying them at all stages of their journey through the disease with services tailored to their needs; it aims to improve the quality of life of patients and raise public awareness of the fight against blood diseases. AIL is organised into 82 provincial sections, which are autonomous from both a legal and an administrative point of view. The transparency with which the funds are used, in the same place where they are collected, is the basis of its way of operating. Read more…
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served