ASAPHE – Asociación de Ayuda a Pacientes Hemato-Oncológicos (Venezuela)
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Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

ASAPHE es una organización sin fines de lucro, con personalidad jurídica propia, no gubernamental , constituida por un grupo de personas que padecen esta enfermedad, familiares y amigos.
MISION:
Ayudar a personas con enfermedades hemato-oncológicas y Estroma Gastrointestinal para que reciban atención integral logrando mantener su calidad de vida e integración activa a la sociedad.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served