ASCOL (Spain)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
ASCOL is a private non-profit association that was founded in 1992. At that time, in the Haematology Department of the Hospital Clínico de Salamanca, the idea was maturing, and even more so the need, to have an association to help patients and their families affected by leukaemia or any other blood disease, to reach those areas where medicine and institutions could not reach. The idea and the need were clear, but we had to find someone who could implement it. At that time there were only eight of us, and with the impetus of the Haematology Department and especially of Doctor López Borrasca, on 18 July 1995 we set up the Bone Marrow Transplant Unit that bears his name.
Support services offered and available resources

Information on COVID-19
- COVID-19 information hub

Services for HCP
- Healthcare professional education

Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support

Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars

Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages

CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets

Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served
