Asociación de Familias Oncohematologicas de Lanzarote (A.F.O.L) (Spain)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

A.F.O.L. (Asociación de Familias Oncohematológicas de Lanzarote) is a non-profit association, created in 2001 by a group of parents who have gone through and are going through the experience of having a child with cancer. Once recognised as such, we extended our scope of action to adults, who today make up a significant number in our community.

We want to provide cancer patients and their families with the psychological, social, educational, economic support (special cases) and home help necessary to attend to the patient and their families in the best possible conditions.

A.F.O.L. supports children, adults and their families in the hospital from the time of diagnosis until their full social, work or educational integration, and whenever the family needs it.

Since its creation, AFOL has been growing day by day with the support of members, collaborators and the work of professionals, with the satisfaction of seeing that, year after year, we are getting stronger as an association.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare
  • Financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served