Associação Portuguesa de Leucemias e Linfomas (APLL) Portuguese Leukemia and Lymphoma Association (Portugal)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

The Portuguese Leukaemia and Lymphoma Association is a non-profit IPSS, made up by patients and their families, carers, health professionals and volunteers. The strength of the APLL is all of us! Together We Are Stronger!

In our daily work we encourage and strengthen relationships between everyone, namely patients so that their trials can be overcome.

To be a community of national and international reference for patients, family members, carers, volunteers and health professionals. Created, with the aim of ensuring a greater quality of life, up-to-date information and care. Informed, supported patients will be better able to overcome the acute phase of their illness.

Our intervention is complemented with psychological and physical support to the community (patients, family members, carers…). The dissemination of ongoing research and innovation in different therapies is one of the aspects that we consider to be of great importance, which has been one of our concerns in recent years.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served