Association Capucine (France)


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Depuis 1996, l’Association Capucine se bat pour renforcer les chances de guérison des malades atteints de leucémie ou d’autres maladies graves du sang.
Pour gagner contre la leucémie, notre engagement s’articule autour de trois missions :
- Soutenir la recherche médicale
- Favoriser l’inscription de donneurs volontaires de moelle osseuse
- Apporter un soutien moral
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served