Association Capucine (France)

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Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

Depuis 1996, l’Association Capucine se bat pour renforcer les chances de guérison des malades atteints de leucémie ou d’autres maladies graves du sang.

Pour gagner contre la leucémie, notre engagement s’articule autour de trois missions :

  • Soutenir la recherche médicale
  • Favoriser l’inscription de donneurs volontaires de moelle osseuse
  • Apporter un soutien moral 

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served