Bone Marrow for Leukaemia Trust (Ireland)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

We are a charity specifically dedicated to supporting people in Ireland who have Leukaemia, Lymphoma or Myeloma and have had or may need a stem cell transplant.

We provide direct support for patients and their relatives – especially recognising the support needed for those coming from outside Dublin. We also support the running of the Haematology Department in St James’s Hospital, Dublin, in the National Allogeneic Transplant Center. It is the only location where an adult can receive a sibling or matched unrelated donor stem cell transplant.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served