Bone Marrow for Leukaemia Trust (Ireland)


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
We are a charity specifically dedicated to supporting people in Ireland who have Leukaemia, Lymphoma or Myeloma and have had or may need a stem cell transplant.
We provide direct support for patients and their relatives – especially recognising the support needed for those coming from outside Dublin. We also support the running of the Haematology Department in St James’s Hospital, Dublin, in the National Allogeneic Transplant Center. It is the only location where an adult can receive a sibling or matched unrelated donor stem cell transplant.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served