Bulgarian Lymphoma Association (Bulgaria)


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Bulgarian Lymphoma Association is a non-profit organization founded in 2006.
The association was established to help and support patients affected by this disease and their relatives.
The goals of BSL are:
- protection of human rights and improving the quality of life of patients with lymphoma;
- providing access to adequate and timely medical care, as well as assistance in providing medicines, diagnostic tools and modern methods of treatment;
- improving doctor-patient communication;
- physical and emotional stability of patients and their loved ones;
- raising awareness of the disease with a view to prevention and early diagnosis;
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages 1
- Website pages 2
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served