CFP “DROP OF BLOOD” (Ukraine)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

Purpose of the Foundation:

  • facilitate access of every person suffering from CLL, the most advanced treatment options and rehabilitation;
  • promote psychological support of people with CLL and their families;
  • promoting quality of diagnosis and treatment of people with CLL;
  • attract the attention of state authorities and local governments and the public to the problems of oncology in Ukraine.

We have experience in:

  1. Conducting SCHOOLS OF PATIENTS for patients with CLL.
  2. Conducting a survey of patients with CLL.
  3. Advocacy for the rights of access of patients with CLL to modern treatment of CLL.

CFP «DROP OF BLOOD» currently represents 1000 members or patients with CLL (information as of October 2020).

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served