Children’s Leukemia Research Association (USA)
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Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

Under the direction of our Medical Advisory Committee, CLRA is committed to directing the funds of the Association to the most promising leukemia (BLOOD CANCER) research projects in the hopes of isolating the causes, finding a cure, and where funding is not duplicated from other sources.

The CLRA is a not-for-profit organization governed by a volunteer Board of Directors.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served