CLL Advocates New Zealand (New Zealand)

Scope of organisation

CLL-specific support group/organisation


CLL Advocates NZ is a group of individuals affected by CLL and medical specialists active in the treatment of CLL, who want to:

  • empower patients to advocate for and gain access to world-class treatments for CLL
  • build public knowledge and understanding of the potential of modern CLL therapies to transform and save lives
  • encourage the development of NZ guidelines to ensure equitable access to best practice treatment for all CLL patients, irrespective of geographic, ethnic or socio-economic differences
  • promote and support NZ-based research on CLL, including the value and importance of developing and participating in clinical trials, and improving the quality of NZ data on CLL
  • build awareness of accessibility and funding models in use in comparable countries, and
  • form connections internationally with other CLL patient groups and advocates

Support services offered and available resources


Information on COVID-19

Services for HCP

  • Healthcare professional education

Patient support services

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served