CLL Ireland (Ireland)
Email
WebsiteScope of organisation
CLL-specific support group/organisation
Description
Chronic Lymphocytic Leukaemia (CLL) Ireland is a patient led voluntary group and is the only charity focused on CLL in Ireland. The aims and objectives of CLL Ireland includes to support CLL patients, carers and their families and advocate with them and on their behalf, to raise awareness of CLL amongst the public and the political body, and to encourage ongoing research into CLL.
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served