DLH – Deutsche Leukämie- & Lymphom-Hilfe e.V. (Germany)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
DLH is the federal organisation of support groups for adults with hematologic malignancies in German.
It provides programs, activities and services to help, inform and advocates for patients with CLL and has vast experience in the areas of information services, help lines, advocacy and drug assessment.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served