ELLYE – Ensemble Leucémie, Lymphomes Espoir


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
ELLyE – Ensemble Leucemie Lymphomes Espoir is a French non-governmental organisation that came out of a merger of two national organisations: France Lymphome Espoir and SILLC. Founded in 2006,in its current form ELLyE exists since 2021. For over fifteen years, it has been dedicated to supporting individuals affected by lymphoma or chronic lymphocytic leukemia, focusing on four essential statutory missions: health information, support throughout the journey with the disease, advocacy with public authorities, and contribution to research efforts.
Support services offered and available resources
Patient support services
Education services / Capacity building
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos (1)
- Videos (2)
- Website pages
CLL Information
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served