Fundación Colombiana de Leucemia y Linfoma (Colombia)

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Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

We are a non-profit organisation founded in 2007, made up of professionals committed to providing psychosocial support, informing, representing and advising parents of children and young people with cancer and adults living with leukaemia, lymphoma, myeloma and other haemato-oncological diseases, as well as their families and carers, in all matters concerning their illness and the health system.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served