Fundación Esperanza Viva (Colombia)
Scope of organisation
CANCER support organisation (non-CLL specific)
Description
Fundación Esperanza Viva (FEV) is an independent, non-profit organization, created with the objective of advising patients with oncological and hematological pathologies and their caregivers in several important aspects, self-management of well-being, navigation in the Colombian health system to access a comprehensive treatment, elimination of barriers to access health services and emotional support to face the diagnosis in a positive way.
FEV was founded in 2006 and since then has provided free support to more than 7,000 people in Colombia. Among the programs developed at FEV are:
- Continuing Education for patients and caregivers
- Legal advice for access to health services
- Emotional support
Fundación Esperanza Viva (FEV) currently represents 3206 members or patients with CLL (information as of August 2021).
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served