Fundación Josep Carreras (Spain)
Email
WebsiteScope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
In 2010 we created the Josep Carreras Leukaemia Research Institute (IJC), one of the few centres in the world devoted entirely to leukaemia and other haematological malignancies. The IJC wants to promote the development of research in the field of oncohaematology, accelerate the implementation of new treatments, improve care and patient survival, contribute to the training of new researchers and establish synergies with other national and international research groups.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served