Hematologický pacient (Association of patients with hematological malignancies) (Slovakia)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
We are a civic association representing patients with hematological malignancies, which are cancers (types of cancer) of the blood, hematopoietic cells and lymphatic system. Hematological malignancies include:
- leukemia
- lymphomas
- myelodysplastic syndromes
- multiple myeloma
- polycythemia vera
- essential thrombocythemia
- myelofibrosis
Our mission is to actively represent and promote the interests of patients with these diseases in the exercise of their right to health care leading to longer life and improved quality.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served