House086 (China)

Scope of organisation

Other

Description

Lymphoma Home was established on March 29, 2011. It is the only online community for lymphoma patients in China, and the number of registered users has exceeded 47,000 . Because the staff here are basically former lymphoma patients , the service slogan of the lymphoma home is ” only the patients know you best ” . Emotional communication, medical services, and nutritional support are comprehensively covered on this platform, making it a comprehensive platform to help lymphoma patients recover.

On March 21, 2017, Lymphoma House became the 68th member of the International Lymphoma Consortium. Lymphoma Home will participate in the exchange and cooperation of global lymphoma patient organizations, and provide Chinese patient data for the living conditions of global lymphoma patients.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served