Kanserle Dans Derneği (Dance with Cancer) (Turkey)


Scope of organisation
CANCER support organisation (non-CLL specific)
Description
Dance with Cancer Association is a patient association that aims to detect early cancer and prevent cancer, and works to make cancer treatment patient-centered. The association was founded in 2013 when two friends, Ebru Tontaş and Esra Ürkmez, whose family members have cancer, decided to share their experiences and support those who are going through the same process. Since the year it was founded, it has continued to work with various projects and activities for cancer patients and their relatives, in cooperation with international and domestic patient associations.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served