Kanserle Dans Derneği (Dance with Cancer) (Turkey)
Back to Hub

  Email      Website

Scope of organisation

CANCER support organisation (non-CLL specific)

Description

​Dance with Cancer Association is a patient association that aims to detect early cancer and prevent cancer, and works to make cancer treatment patient-centered. The association was founded in 2013 when two friends, Ebru Tontaş and Esra Ürkmez, whose family members have cancer, decided to share their experiences and support those who are going through the same process. Since the year it was founded, it has continued to work with various projects and activities for cancer patients and their relatives, in cooperation with international and domestic patient associations.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served