Kraujas – Oncohematological patients organization (Lithuania)


Scope of organisation
Description
Kraujas is a non-profit and non-governmental organization working to unit patients with all onco-hematological diseases, their relatives, medical experts and everyone who supports its activities.
It actively participates in health politics in Lithuania, representing patients’ needs, speaking out for important issues related to onco-hematological diseases and presenting concerns that patients are facing, seeking constructive and effective dialogue between patients and health politicians.
Kraujas provides individual psychological consultations, seminars, support groups for patients and their relatives. Association provides individual psychological consultations, seminars, support groups. The association constantly publishes various brochures and books in order to educate and inform patients as well as raise awareness about the diseases.
Since 2005 Kraujas is also active in a social initiative ‘BeGood’, that promotes bone marrow donation in Lithuania.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served