L’Association Qui Lutte Contre la Leucémie Laurette Fugain (France)

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Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

The Laurette Fugain association has been working since 2002 on 3 main missions: to support paediatric and adult medical research into leukaemia and, more broadly, blood cancers, to mobilise donations of life (blood, platelets, plasma, bone marrow, umbilical cord blood) which are essential to the patient’s recovery process, and to help patients and their families.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served