Leukämie-Online e.V. / LeukaNET (Germany)
Scope of organisation
Description
The internet platform www.leukaemie-online.de, operated by the non-profit, patient-led association LeukaNET e.V., is one of the most frequented internet platforms for leukemia patients and their relatives in Germany, Austria and German-speaking Switzerland. For many leukemia patients, our platform and the volunteer association behind it have served as a reliable knowledge platform and exchange opportunity for more than 20 years. Leukemia-Online is operated without commercial interest as an open and independent online community by patients for patients and relatives and without generous funding from cancer charities, the healthcare system or health insurance companies. With 3,400 registered participants, thousands of unregistered visitors and almost 40,400 contributions on around 4,700 topics, it has become an active information and communication hub for leukemia patients.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served