Leukämiehilfe Steiermark (Austria)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Leukämiehilfe Steiermark (Austria) provides support for those affected and their families. As a non-profit organization, we are committed to improving the hematology infrastructure and promoting and financing scientific research in this area.
Our goals:
- Advice and help for patients and their relatives
- Improving the infrastructure for patients in the inpatient and outpatient areas of the Clinical Department of Hematology
- Promotion and funding of scientific research and the
- Purchase of the necessary tools
- public relation
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served