LHRM – Leukaemiehilfe RHEIN-MAIN e.V. (Germany)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
LHRM is a patient-focused association, providing support and information for those affected by hematological disorders. Here, patients can find access to information through numerous, amiable formats regarding their condition and the course of treatment. Open discussions among other patients, caregivers and specialists provide access to quick, online guidance. LHRM also participates in the co-operation and exchange of information with other self-help groups, with a commitment to improving the overall patient environment.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served