Scope of organisation

Description

The Slovenian Association of Patients with Lymphoma and Leukemia, L & L, was founded on May 15, 2007.

The Slovenian lymphoma and leukemia patient association, L&L, has more than 750 patients suffering from lymphoma, leukemia, multiple myeloma, myelodysplastic syndrome, and other forms of blood disorders, as well as their carers, experts and supporters.

OUR OBJECTIVES

• Informing and raising public awareness of lymphomas, leukemia and other blood diseases,
• The quest for the early detection of lymphomas, leukemia and other blood diseases, and the best diagnostic treatment and treatment of patients,
• The pursuit of comprehensive care for patients during and after treatment,
• Informing and assisting patients and their relatives during treatment,
• Care for patients to understand the proposed methods of treatment and to participate in clinical trials at home and abroad,Raising awareness of their rights in the field of health and social care and education,
• Advocating for a correct and human attitude towards the patient by all the participating institutions in the process of healing, rehabilitation and return to the working, social and educational environment,
• Raising awareness of the importance of donation of blood-forming stem cells,
  Promoting the spread of the Slovenian register of blood donor stem cell donors,
• Organization of professional lectures, conferences and congresses for patients and relatives in the field of health and a healthy lifestyle, organization of workshops, sports and cultural events, etc.,
• Promoting a healthy lifestyle
• Developing and organizing self-help and volunteering.

With several supporting programs, projects and campaigns aimed at the early detection of blood cancers, access to state-of-the-art diagnostics, treatment, and comprehensive care of patients with blood cancers, as well as good cooperation with the health professionals, decision-makers and media, the L&L organization has managed to set the gold standard for modern advocacy for patients in its 15 years of operation in Slovenia.

Support services offered and available resources