LLM – Lösemi Lenfoma Miyelom Derneği (Turkey)


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
The aim of our association is to prevent, diagnose and treat blood cancer by:
- providing support to patients by enabling them to receive the most appropriate treatment
- planning, developing, funding and supporting studies and research for all haematological cancers
- providing resources for the scientific and social responsibility projects of physicians and researchers working in this field
- organizing national or international scientific meetings (congresses, symposiums, seminars, courses, workshops, etc.) and producing publications
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served