LLM – Lösemi Lenfoma Miyelom Derneği (Turkey)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

The aim of our association is to prevent, diagnose and treat blood cancer by:

  • providing support to patients by enabling them to receive the most appropriate treatment
  • planning, developing, funding and supporting studies and research for all haematological cancers
  • providing resources for the scientific and social responsibility projects of physicians and researchers working in this field
  • organizing national or international scientific meetings (congresses, symposiums, seminars, courses, workshops, etc.) and producing publications

Support services offered and available resources

 

Information on COVID-19

Services for HCP

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served