LLS – The Leukemia & Lymphoma Society (USA)


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Dedicated to curing leukemia, lymphoma, myeloma, and other blood cancers, we are now The Leukemia & Lymphoma Society (LLS), the world’s largest voluntary (nonprofit) health organization dedicated to funding blood cancer research and providing education and patient services.
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served