Lymfklierkanker Vereniging Vlaanderen vzw (Lymphoma Association Flanders) – (Belgium)
Email
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Lymfklierkanker Vereniging Vlaanderen vzw (Lymphoma Association Flanders) is a patient organization for people with lymphoma, CLL and Waldenström’s disease and their loved ones in the Dutch part of Belgium. We give information about the disease, treatments and aftercare. We give info through our website, brochures, digital newsletter, webinars and symposia. We organize activities and bring patients and their loved ones together in our facebookgroup.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served