Lymphoma Action (UK)
Email
WebsiteScope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Our staff and volunteers work hard to make sure that everyone affected by lymphoma/CLL in the UK has the best possible information, support, treatment and care. To achieve this, we work closely with our Trustees and our Medical Advisory Panel.
Together we help people with lymphoma/CLL and their families by providing reliable information and the right support. We support doctors and nurses so that they can provide the best care possible to people with lymphoma/CLL. We raise awareness and make sure that lymphoma/CLL is not forgotten by government and policymakers. We support the thousands of fundraisers and volunteers who make our work possible.
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Self-management Workshops
- Patient meetings
- Facebook Support Group
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served