Scope of organisation
Description
Lymphoma Coalition (LC), a worldwide network of patient groups with a full or partial focus on providing support to patients with lymphoma, including CLL, was formed in 2002.
The need for a central hub of consistent as well as reliable current information was recognised as well as the need for lymphoma patient organisations to share resources, best practices, and policies and procedures. With this in mind, four lymphoma organisations started LC. Today, there are over 80 member organisations from over 50 countries.
The mission of the organisation is enabling global impact by fostering a lymphoma ecosystem that ensures local change and evidence-based action. LC’s current strategy is focused on ensuring impact within two pillars: information and advocacy.
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages 1
- Website pages 2
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers – Global reports
- Advisory statements and position papers – Regional reports 1
- Advisory statements and position papers – Regional reports 2
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served