

Scope of organisation
Description
The association aims to help patients suffering from lymphoma and leukemia by increasing the level of knowledge about this disease to recognize the signs and symptoms, which would lead to an early detection of the disease and the possibility of starting treatment in time.
Within the Association, people from all categories are involved: doctors, patients who have been cured, patients in treatment, relatives, etc.
Through this Association, patients have the opportunity to get in touch with each other, to share their experiences to help them live a life as normal as possible and last but not least to know the rights of the patient.
The patient with lymphoma or leukemia needs support from both medical staff and family, friends or other patients who have had the same experience.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served