OSANNA (Ukraine)
Scope of organisation
CANCER support organisation (non-CLL specific)
Description
OSANNA “is an association of citizens, which unites on a voluntary basis individual and collective members based on the unity of their professional and public interests.
The public organization was established to meet and protect its legitimate, social, economic, creative, age, national and cultural, sports interests, to promote environmental, health, amateur sports, cultural, educational and scientific activities and to protect its members suffering from chronic myelogenous leukemia.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served