PKOPO (Poland)
Scope of organisation
Description
The Polish Cancer Patient Coalition is a joint voice of over 100,000 cancer patients in Poland, associated in 44 organizations from all over the country. Together, we work to improve the situation of all oncological patients, children and the quality and life expectancy of cancer patients in Poland, thanks to the implementation of the highest standards of prevention, diagnosis, therapy and oncological rehabilitation.
We implement our mission and goals through specific activities for individual patients and their relatives, as well as systemic changes in Polish oncology, as well as education of leaders, patients and their relatives, and the society by publishing houses, among others. free magazine “Głos Patient Onkologiczny” and socialmedia: portal glospacjenta.pl, website pkopo.pl, profile on Facebook and social campaigns.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served