PKOPO (Poland)

Scope of organisation

CANCER support organisation (non-CLL specific)

Description

The Polish Cancer Patient Coalition is a joint voice of over 100,000 cancer patients in Poland, associated in 44 organizations from all over the country. Together, we work to improve the situation of all oncological patients, children and the quality and life expectancy of cancer patients in Poland, thanks to the implementation of the highest standards of prevention, diagnosis, therapy and oncological rehabilitation.

We implement our mission and goals through specific activities for individual patients and their relatives, as well as systemic changes in Polish oncology, as well as education of leaders, patients and their relatives, and the society by publishing houses, among others. free magazine “Głos Patient Onkologiczny” and socialmedia: portal glospacjenta.pl, website pkopo.pl, profile on Facebook and social campaigns.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served