Stichting Hematon (Netherlands)
WebsiteScope of organisation
Other
Description
Hematon is the patient organisation for patients with a haematological-oncological disorder and/or people who have undergone a stem cell transplant. Their goal is to support patients in all aspects that life with and after cancer entails.
They also provide support for relatives and donors of patients. Companion contact, advocacy and information provision are their spearheads. Hematon bundles knowledge and experience. The organization therefore mainly consists of involved and (experiential) expert volunteers.
Hematon meets three needs in patients: knowing, sharing and meeting. “We make it possible for patients to share knowledge and experiences with each other and with experts and ensure meetings between patients.”
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Magazines
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served