Stiftung zur Förderung der Knochenmarktransplantation (SFK) (Switzerland)


Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Our appeal is to people who have always wanted to know how to save lives!
The Foundation for the Promotion of Bone Marrow Transplantation (SFK) provides information on the requirements placed on a bone marrow/stem cell donor.
The SFK has founded regional SOS groups and looks after these patient groups in seven cities in German-speaking Switzerland. However, due to the Covid19-situation currently only “online”._
Patients with cancer in bone marrow – and their relatives – meet in the SOS groups- leukaemias, myelodysplastic syndromes, multiple myeloma/plasmacytoma, lymphomas.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served