Stiftung zur Förderung der Stammzell- und Knochenmarktransplantation (Switzerland)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

Our Foundation informs and accompanies those affected by severe blood diseases as well as their families and relatives and is available with advice and support. No one should have to go down the path of stem cell disease alone. The SFK informs patients and the public about the possibilities, limits and technical means of stem cell or bone marrow transplantation, which confronts those affected with a profound decision, raises hopes, but also raises fears. Instead of knowledge, there are still misconceptions with unfounded fears – but also premature hopes. Support groups are safe places to share fears and frustrations, as well as ask questions without feeling judged or misunderstood. Participants in a support group can understand their experiences in ways that others may not know.

The SFK offers participation in self-help groups for leukaemias, myelodysplastic syndromes, multiple myeloma/plasmacytoma and lymphomas.

Our organisation also supports research projects in the field of stem cell diseases and awards the SFK Research Prize every two years.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served