Stowarzyszenie Wspierające Chorych na Chłoniaki “Sowie Oczy” (Polish Lymphoma Association) (Poland)

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Scope of organisation

Other

Description

The mission of the Association is to promote knowledge about diseases of the lymphatic system, the possibilities and methods of their
diagnosis, diagnostic tests, treatment regimens and the availability of drugs.
The aim of the “Sowie Oczy” Association is to help patients in need by facilitating
their access to psycho-oncological and legal care as well as sharing knowledge and experience in the fight against
cancer

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served