Tanzania CLL Patient Support Group (Tanzania)

Scope of organisation

CLL-specific support group/organisation


Leukaemia’s and other blood cancers are becoming increasingly common in Tanzania. However, knowledge and awareness are not increasing at the same pace. Leukaemia diagnosis and its management are mainly offered under haematologists/oncologists care at two main referral hospitals located in Dar es Salaam. Patients usually have to travel long distances to access care and treatment.

There is little social support offered to people with leukaemia, and awareness in the community is generally low. Tanzania CLL Patient Support Group aims at supporting and improving patient outcomes, access to treatment and coping with leukaemia. The group is not yet formally registered in the process of being registered as a formal entity.

Support services offered and available resources


Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served