The Association for Blood Cancer Patients Aid / Stowarzyszenie Pomocy Chorym na Nowotwory Krwi (Poland)

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Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

The main goal of the Association’s activities is to help patients of the Hematology Department of Zamojski Szpital Niepubliczny Sp. z o. o. through, among others:

  • collecting funds for the purchase of diagnostic equipment and medical equipment for the treatment of patients,
  • help in the supply of drugs,
  • informing and educating patients and their families in the field of blood cancers,
  • improving the conditions of hospitalization in the ward,
  • promoting bone marrow donation.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

  • Apps
  • Newsletter
  • Podcasts
  • Videos
  • Website pages

CLL Information

  • Clinical Trials directory
  • CLL news and conference coverage
  • Online leaflets & booklets
  • Printed leaflets & booklets

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served