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Abrale (Brazilian Lymphoma and Leukaemia Association) is a non-profit organisation, nationwide, created in 2002 by patients and family members with the mission of offering help and mobilising partners so that all people with cancer and blood diseases have access to the best treatment.
Concept of the patient as a whole, the conditions of patient/individual/identity being inseparable (professional, family, political, scientific, etc.)
– Personalisation of care, whatever it may be
-Respect for the right to the best therapeutic options, according to criteria of efficacy and quality of life
– Comprehensive social concept: patient/family/friends/health team
AEAL, Asociación Española de Afectados por Linfoma, Mieloma y Leucemia, was founded by patients on 8 October 2002. The objectives of AEAL are education, information and support for those affected by oncohematological diseases.
As an association, we represent all haematological patients to society and public institutions in order to demand better care for these patients and to promote their quality of care and improve their quality of life. In addition to making leukaemia and other haematological diseases more visible and raising public awareness of the importance of blood, bone marrow and cord blood donation.
ACLT is a 40+ time award-winning charity committed to providing hope to patients living with blood cancer and illnesses where a matched donor (stem cell, blood or organ) is required to save a life. Our work is driven by a belief that no one should die waiting for a donor to become available.
AGALEMO – Costa Rica Asociacion Amalia y Glenn Dewey para Pacientes con Leucemia y Mieloma (Costa Rica)
AGALEMO (Amalia & Glenn Dewey Association for Leukemia and Myeloma Patients) was founded in 1998 and became a legal organization in 2004. We had legal struggles in order to have access to the treatments for CML and Myeloma which – up to now – are our focus. We have been in close contact with more than 20 leukemia organizations and more than 80 non-leukemia organizations in the LATAM region for over 15 years. Most LATAM region countries are in the low and middle-income segment of countries and healthcare are almost always well behind the standards.
Armenian Hematology Association is a national society for specialists working in field of clinical and laboratory hematology, patient advocacy, transfusion medicine, thrombosis and haemostasis.
We are professional organization but we are close collaborate with our patients and caregivers.
We are organizing educational days and schools, translating materials and guidelines.
Also we are working with our active patients to organize first Armenian patients organization in hematology field.
AIL promotes and supports scientific research for the treatment of leukaemia, lymphoma and myeloma; it assists patients and families by accompanying them at all stages of their journey through the disease with services tailored to their needs; it aims to improve the quality of life of patients and raise public awareness of the fight against blood diseases. AIL is organised into 82 provincial sections, which are autonomous from both a legal and an administrative point of view. The transparency with which the funds are used, in the same place where they are collected, is the basis of its way of operating.
The mission of the Alivia Foundation is to mobilize and activate cancer patients to be a courageous, active patient, seeking the best therapies, doctors and centers, the shortest diagnostic test queues and any other information that can improve their treatment outcomes and health. The Alivia Foundation educates and represents cancer patients in the public debate and provides tools that enable them to more confidently decide about their health, place and method of treatment.
ALMA is a patient organization legally constituted in 2006, we are made up of patients and families.
MISION: Provide emotional and practical support to patients with leukemia and other blood diseases not supported by other patient organizations.
VISION: To be the reference patient support organization, providing quality work, meeting the needs of our beneficiaries, the patients.
Amal was founded in April 16, 2011 in Marrakech, Morocco. We are working on raising awareness and fighting stigma by organizing patient meetings, producing educational material, organizing activities in the hospital, we provide psychological support، sometimes medication and tests to Patients in need without health insurance, clothes, toys and organize parties to Patients and parents in the Hospital. Our main project is building a patient home to allow Patients coming from remote area to continue their chemotherapy cure and be treated with dignity.
We are a group of patients and caregivers with the concern of getting to know better our diseases and the best treatments available, and working on guide newly diagnosed people with the process of acceptance, and searching for the best way to access treatment. Informing them about their Health Rights.
The Asociación Mexicana de Lucha contra el Cáncer (AMLCC) is a civil association founded in 1972 committed to people suffering from cancer in Mexico with a special focus on the most vulnerable sectors of society.
The Romanian Association of Rare Cancers – ARCrare was founded in 2011. We started from the idea that patients affected by rare cancers face the same problems as patients affected by rare diseases, most of them feel marginalized by both rare diseases and common cancers organizations, and therefore we have set ourselves the goal through the Romanian Rare Cancers Association to improve this situation.
The association’s mission is to improve the chances of healing current and future patients with hematological diseases in Romania, providing support and counseling to patients and their families, as well as acting to improve treatment conditions in Romanian hospitals.
ASAPHE es una organización sin fines de lucro, con personalidad jurídica propia, no gubernamental , constituida por un grupo de personas que padecen esta enfermedad, familiares y amigos.
Ayudar a personas con enfermedades hemato-oncológicas y Estroma Gastrointestinal para que reciban atención integral logrando mantener su calidad de vida e integración activa a la sociedad.
ASCOL is a private non-profit association that was founded in 1992. At that time, in the Haematology Department of the Hospital Clínico de Salamanca, the idea was maturing, and even more so the need, to have an association to help patients and their families affected by leukaemia or any other blood disease, to reach those areas where medicine and institutions could not reach. The idea and the need were clear, but we had to find someone who could implement it. At that time there were only eight of us, and with the impetus of the Haematology Department and especially of Doctor López Borrasca, on 18 July 1995 we set up the Bone Marrow Transplant Unit that bears his name.
La misión fundamental de Asleuval es poner en marcha una asociación de pacientes de leucemia, linfoma, mieloma y otras enfermedades de la sangre; formada por un colectivo de personas que comparten una experiencia particular y que desean vivir y superar la enfermedad.
A.F.O.L. (Asociación de Familias Oncohematológicas de Lanzarote) is a non-profit association, created in 2001 by a group of parents who have gone through and are going through the experience of having a child with cancer. Once recognised as such, we extended our scope of action to adults, who today make up a significant number in our community.
Asul represent the patients in a country where no such association exists so far, to relieve them first, to nucleate them, to distribute activities, to study the target population of members and finally the mission to do everything possible to protect their rights and to improve the quality of life of the patient and their families.
Aval is a non-governmental, non-profit organization. It works in search of solutions for all those affected by lymphoma in the country, formed in 2003.
The Portuguese Association Against Leukaemia (APCL) was founded in January 2002 as a result of the initiative of a group of patients who survived haemato- oncological pathologies (Leukaemias and Lymphomas) and a group of doctors from the Francisco Gentil Portuguese Institute of Oncology (IPOFG) of Lisbon who treated them.
The main motivation of the founders of APCL lay in their understanding of the importance of raising awareness and mobilising civil society in support of all those who daily struggle with the devastating disease of Leukaemia.
APCL’s mission is to contribute, at a national level, to increase the effectiveness of the treatment of Leukaemia and other related haematological neoplasms.
Associação Portuguesa de Leucemias e Linfomas (APLL) Portuguese Leukemia and Lymphoma Association (Portugal)
The Portuguese Leukaemia and Lymphoma Association is a non-profit IPSS, made up by patients and their families, carers, health professionals and volunteers. The strength of the APLL is all of us! Together We Are Stronger!
Depuis 1996, l’Association Capucine se bat pour renforcer les chances de guérison des malades atteints de leucémie ou d’autres maladies graves du sang.
Pour gagner contre la leucémie, notre engagement s’articule autour de trois missions :
– Soutenir la recherche médicale
– Favoriser l’inscription de donneurs volontaires de moelle osseuse
– Apporter un soutien moral
The association of citizens for rare disease “Life With Challenges” is founded by parents and patients who face life with rare diseases in the year 2009.
The beginnings of the Association of Patients with Blood Diseases of Slovenia date back to 1993, when, on the initiative of Jožef Pretnar, MD, and Erika Pertinač, MD, the first talks on the establishment of an Association of Patients with Blood Diseases began. After thorough preparation of the documentation, on 13 December 1995, patients after bone marrow transplantation, relatives of patients, doctors and nurses from the Clinical Department of Haematology of the University Clinical Centre in Ljubljana, and representatives of the Ministry of Health of the Republic of Slovenia gathered at the University Clinical Centre in Ljubljana and drafted the framework guidelines for the work and establishment of the Society. Thus, on 13 December 1995, the Association of Patients with Blood Diseases was founded and registered with a notary. Darja Jakelj was elected as the first President of the Society.
The BIRKAN association is a non-profit charitable organization that provides solutions that will make life easier for cancer patients and their relatives.
Blodkreftforeningen is a nationwide Norwegian organization for people who have or have had blood cancer-related diseases – as well as their relatives.
Non-governmental, non-profitable and purely social organization.
We’re a community dedicated to beating blood cancer by funding research and supporting those affected. Since 1960, we’ve invested over £500 million in blood cancer research, transforming treatments and saving lives.
The Swedish Blood Cancer Association exists for those affected by blood cancer or other serious blood disease, relatives and staff in hematology. The association is a non-profit nationwide patient organization in Sweden, that is a member of the Swedish Network against Cancer.
We see ourselves as the “voice of those affected by blood cancer” and work actively, committedly and long-term to contribute to a better everyday life for the country’s blood and blood cancer victims.
We are a charity specifically dedicated to supporting people in Ireland who have Leukaemia, Lymphoma or Myeloma and have had or may need a stem cell transplant. We provide direct support for patients and their relatives – especially recognising the support needed for those coming from outside Dublin. We also support the running of the Haematology Department in St James’s Hospital, Dublin, in the National Allogeneic Transplant Center. It is the only location where an adult can receive a sibling or matched unrelated donor stem cell transplant.
Bulgarian Lymphoma Association is a non-profit organization founded in 2006.
The association was established to help and support patients affected by this disease and their relatives.
The goals of BSL are:
– protection of human rights and improving the quality of life of patients with lymphoma;
– providing access to adequate and timely medical care, as well as assistance in providing medicines, diagnostic tools and modern methods of treatment;
improving doctor-patient communication;
– physical and emotional stability of patients and their loved ones;
– raising awareness of the disease with a view to prevention and early diagnosis;
Since 2008, Campaigning for Cancer continues to advance its mission of ensuring patient’s rights are protected through ensuring dialogue amongst role-players, facilitating solutions with regards to cancer prevention and treatment and representing patients with regards to policy, healthcare costs and delivery.
The Canadian Cancer Society is a national charity serving people with all types of cancer.
Its PURPOSE is to unite and inspire all Canadians to take control of cancer.
Its VISION is to champion work leading outcomes in cancer prevention, treatment and support.
Its MISSION, in trusted partnership with donors and volunteers, is to improve the lives of those affected by cancer through world-class research, transformative advocacy and compassionate support.
Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.
We are a non-profit association, made up of people with Chronic Myeloid Leukaemia, family and friends.
Cent pour Sang la Vie is a French association under the 1901 law, created in 1999, committed to the fight against leukemia in all its forms.
Purpose of the Foundation:
• facilitate access of every person suffering from CLL, the most advanced treatment options and rehabilitation;
• promote psychological support of people with CLL and their families;
• promoting quality of diagnosis and treatment of people with CLL;
• attract the attention of state authorities and local governments and the public to the problems of oncology in Ukraine.
We have experience in:
1. Conducting SCHOOLS OF PATIENTS for patients with CLL.
2. Conducting a survey of patients with CLL.
3. Advocacy for the rights of access of patients with CLL to modern treatment of CLL.
CFP «DROP OF BLOOD» currently represents 1000 members or patients with CLL (information as of October 2020).
Under the direction of our Medical Advisory Committee, CLRA is committed to directing the funds of the Association to the most promising leukemia (BLOOD CANCER) research projects in the hopes of isolating the causes, finding a cure, and where funding is not duplicated from other sources.
The CLRA is a not-for-profit organization governed by a volunteer Board of Directors.
As a global network, the CLL Advocates Network´s (CLLAN) mission is to improve Chronic Lymphocytic Leukaemia (CLL) patient outcomes.
CLL Advocates NZ is a group of individuals affected by CLL and medical specialists active in the treatment of CLL, who want to:
– empower patients to advocate for and gain access to world-class treatments for CLL
– build public knowledge and understanding of the potential of modern CLL therapies to transform and save lives
– encourage the development of NZ guidelines to ensure equitable access to best practice treatment for all CLL patients, irrespective of geographic, ethnic or socio-economic difference
– promote and support NZ-based research on CLL, including the value and importance of developing and participating in clinical trials, and improving the quality of NZ data on CLL
– build awareness of accessibility and funding models in use in comparable countries, and
– form connections internationally with other CLL patient groups and advocates
Advocate and provide education to improve access to health care that will extend the lives of Canadians affected by Chronic Lymphocytic Leukemia (CLL) and Small Lymphocytic Lymphoma (SLL)
Chronic Lymphocytic Leukaemia (CLL) Ireland is a patient led voluntary group and is the only charity focused on CLL in Ireland.
The aims and objectives of CLL Ireland includes to support CLL patients, carers and their families and advocate with them and on their behalf, to raise awareness of CLL amongst the public and the political body, and to encourage ongoing research into CLL.
CLL Society is an inclusive, patient-centric, physician-curated nonprofit organization that addresses the unmet needs of the chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL/SLL) community through patient education, advocacy, support, and research. We explain the rapidly changing therapeutic landscape and the importance of clinical trials, build patient support networks, engage in research, and educate providers and patients. We believe SMART PATIENTS GET SMART CARE™. Learn more at cllsociety.org.
We are the patient charity arm of the UK CLL Forum ( UK CLL Specialists, clinicians, researchers and scientists). We work closely with Leukaemia Care, Lymphoma Action and Blood Cancer UK on areas from surveys, NICE applications, Webinars and Conferences.
CLL Support currently represents 3,000+ members or patients with CLL in UK and 15,000+ on worldwide Forum (information as of October 2020).
The Cancer Support Community and our global network of 175 locations is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. We provide relevant and highly personalized support when and where it is needed most because Community is Stronger than Cancer.
Formed in March 2018, at CSCK we aim to raise awareness of cancer and offer support and information to patients, families and healthcare professionals across Kosovo. We campaign to increase the quality of life and make treatments available to those affected by the condition. Our interests are blood cancers and particularly myelodysplastic syndromes. Using our networks and national and international collaborations we aim to be the biggest cancer support platform in Kosovo by 2020.
Diagnoza leukemie is a well-established and vocal patient support organisation known for its strong international connection, implementing and modifying best practices and inspiration from the European and global patient communities, into the Czech patient advocacy. On individual basis, they have succeeded in providing access to therapy even for acute leukemia patients.
The DKMS is an international non-profit organisation dedicated to the fight against blood cancer. It was founded in Germany in 1991 by Dr. Peter Harf and since then, with over 1,000 employees, has pursued the goal of giving as many people as possible a second chance at life.
With more than 11 million registered life donors, we have already succeeded in doing this more than 95,000 times through the procurement of stem cell donations. This makes us the world leader in providing patients with stem cell transplants.
DLH is the federal organisation of support groups for adults with hematologic malignancies in German.
It provides programs, activities and services to help, inform and advocates for patients with CLL and has vast experience in the areas of information services, help lines, advocacy and drug assessment.
ELLyE – Ensemble Leucemie Lymphomes Espoir is a French non-governmental organisation that came out of a merger of two national organisations: France Lymphome Espoir and SILLC. In its current form ELLyE exists since 2021.
We are a non-profit organisation, founded with the purpose of contributing to the reduction of mortality from non-communicable diseases by improving their quality of life.
To be the first national organisation that provides information, training and support to patients, to give them and their families a better quality of life.
To inform, educate and guide the population to achieve a timely diagnosis through responsible prevention programmes and disease control.
ESPERANZA Y VIDA – Asociación ecuatoriana de ayuda a pacientes con cáncer Ecuadorian Association to support patients with cancer, hope and life (Ecuador)
Asociación no gubernamental de ayuda a pacientes con cáncer, donde se dictan programas para capacitar y conciencia al paciente y familiar
Estonian Leukaemia and Lymphoma Patients Society / Eesti Leukeemia ja Lümfoomihaigete Liit (Estonia)
Eesti Leukeemia ja Lümfoomihaigete Liit (ELLL for short), or Estonian Leukaemia and Lymphoma Patients’ Society is a non-profit and non-governmental organization aiming to unite all those living in Estonia affected by blood malignancies. The organization is patient run, but in addition we accept as members patients’ family members and friends, relevant health workers and other supporters.
ECPC works for a Europe of equality, where all European cancer patients have timely and affordable access to the best treatment and care available, throughout their life regardless:
– nationality/the country they were born in
– where they live
– their education
– social background
One of the essential missions of Leucémie Espoir is to inform and provide moral support to children and adults with blood diseases and their families. This allows them to have a knowledge base on the management of their pathology and to benefit from the listening and advice of our volunteers. The Federation also provides financial support to enable access to care for some patients. We also provide administrative support by informing them of their social rights and assisting them in their procedures.
Our association helps a lot the new patients to support the disease psychologically and helps financially the patients in need as far as possible.
We are a non-profit organisation founded in 2007, made up of professionals committed to providing psychosocial support, informing, representing and advising parents of children and young people with cancer and adults living with leukaemia, lymphoma, myeloma and other haemato-oncological diseases, as well as their families and carers, in all matters concerning their illness and the health system.
Fundación Esperanza Viva (FEV) is an independent, non-profit organization, created with the objective of advising patients with oncological and hematological pathologies and their caregivers in several important aspects, self-management of well-being, navigation in the Colombian health system to access a comprehensive treatment, elimination of barriers to access health services and emotional support to face the diagnosis in a positive way.
FUNDAHOG es una organización no gubernamental y sin ánimos de lucro,que ejerce una acciòn fundamentalmente asistencial.
Su Misión es prestar orientación y soporte emocional a las personas con diagnóstico de cáncer.
In 2010 we created the Josep Carreras Leukaemia Research Institute (IJC), one of the few centres in the world devoted entirely to leukaemia and other haematological malignancies. The IJC wants to promote the development of research in the field of oncohaematology, accelerate the implementation of new treatments, improve care and patient survival, contribute to the training of new researchers and establish synergies with other national and international research groups.
La Fundación Leucemia y Linfoma (F.L.L.) nació desde la consciencia de lo que suponen las enfermedades onco-hematológicas (leucemia, linfoma, mieloma y otras patologías afines). Personas que habían pasado por la enfermedad y médicos especialistas en hematología emprendieron este proyecto con un objetivo último: Mejorar la calidad de vida y la atención integral de las personas afectadas por estas enfermedades y sus familias, acompañándoles, informándoles, formado al personal que les atiende y contribuyendo a la investigación buscando la mejora de los tratamientos.
PORSALEU es una fundación que desde 2001 apoya gratuitamente a los pacientes del Interior con leucemia, linfomas o enfermedades graves de la sangre y también a sus familiares.
Group Nexus Japan provides appropriate medical information and a place for interaction for patients with malignant lymphoma and their families, as well as research and policies to improve the medical environment for patients and their families. It is a national patient organization whose purpose is to make recommendations.
The Flute Of Light is the home for blood cancer patients in Israel. Their main 3 goals include:
– Empowering patients by providing them with most updated and current information on their disease and treatments
– Teaching them to become active partners in managing their disease
– Fighting for access to treatments and making sure each patient gets the right drug, at the right time.
Imagine a world where you can tap into the health experiences of millions of people – and translate these into an action plan with the support of peers and patient organisations.
The association “Greek Group of Patients with Chronic Lymphocytic Leukemia” was founded in January 2017 based in Thessaloniki by patients in Northern Greece.
It is a non-profit association with the main source coming from the annual subscription of its members, from donations of natural or legal persons and from receipts from various events and activities of the Association.
HEMA is dedicated to changing outcomes of patients with hematological diseases and support for caregivers by strengthening patient advocacy in this area.
We are a civic association representing patients with hematological malignancies, which are cancers (types of cancer) of the blood, hematopoietic cells and lymphatic system. Hematological malignancies include:
– myelodysplastic syndromes
– multiple myeloma
– polycythemia vera
– essential thrombocythemia
Our mission is to actively represent and promote the interests of patients with these diseases in the exercise of their right to health care leading to longer life and improved quality.
This association of patients and their relatives was established for people suffering from hematological cancers and their families.
The organization we created was established in March 2019, but in fact we have been operating since October 2015 as a support group for patients with myelofibrosis under the patronage of the Polish Coalition of Oncological Patients.
Hong Kong Adult Blood Cancer Group, aiming at supporting patients and their families in overcoming leukemia or lymphoma through hard times of treatment, was set up by patients, family members, medical and nursing staff of the Prince of Wales Hospital in 1997. The Group is now serving all blood cancer patients in the territory.
The Hong Kong Blood Cancer Foundation is a non-profit charity organization founded by Professor Raymond HS Liang from the Haematology/Oncology Division of Queen Mary Hospital.
We treat blood cancer with a positive attitude and perseverance. To us, every patient is a human individual with a unique set of needs. We are dedicated to providing them with the best support possible and we strive to improve the quality of life for both the blood cancer patients and their families.
Lymphoma Home was established on March 29, 2011. It is the only online community for lymphoma patients in China, and the number of registered users has exceeded 47,000 . Because the staff here are basically former lymphoma patients , the service slogan of the lymphoma home is ” only the patients know you best ” . Emotional communication, medical services, and nutritional support are comprehensively covered on this platform, making it a comprehensive platform to help lymphoma patients recover.
HULL is the leading Croatian society for hematological patients, their families and caregivers. We are providing help, advocacy and support for patients with AML and other hematological diseases.
The Association (IABCD) is a multidisciplinary organization dedicated to promoting optimal care to improve the quality of life for children and adolescents affected by blood disorders and blood cancer by advancing research, education, treatment and professional practice.
We are a community of patients, survivors, volunteers, supporters, health and social care professionals and researchers. Together we are transforming the experiences and outcomes of people affected by cancer through our advocacy, support services and research.
The German José Carreras Leukemia Foundation is a non-profit association based in Munich
Dance with Cancer Association is a patient association that aims to detect early cancer and prevent cancer, and works to make cancer treatment patient-centered. The association was founded in 2013 when two friends, Ebru Tontaş and Esra Ürkmez, whose family members have cancer, decided to share their experiences and support those who are going through the same process. Since the year it was founded, it has continued to work with various projects and activities for cancer patients and their relatives, in cooperation with international and domestic patient associations.
The Korea Blood Disease and Cancer Association (KBDCA) is a non-profit organisation providing patients and their families with
– Financial support to patients for undergoing treatment
– The latest medical information
– Good quality of education and service when reintegrating to society
KBDCA is also involved in protecting patients` rights and interests for equal treatment.
Kraujas is a non-profit and non-governmental organization working to unit patients with all onco-hematological diseases, their relatives, medical experts and everyone who supports its activities.
It actively participates in health politics in Lithuania, representing patients’ needs, speaking out for important issues related to onco-hematological diseases and presenting concerns that patients are facing, seeking constructive and effective dialogue between patients and health politicians.
The Laurette Fugain association has been working since 2002 on 3 main missions: to support paediatric and adult medical research into leukaemia and, more broadly, blood cancers, to mobilise donations of life (blood, platelets, plasma, bone marrow, umbilical cord blood) which are essential to the patient’s recovery process, and to help patients and their families.
The Slovenian Association of Patients with Lymphoma and Leukemia, L & L, was founded on May 15, 2007.
– Informing and raising public awareness of lymphomas, leukemia and other blood diseases,
– The quest for the early detection of lymphomas, leukemia and other blood diseases, and the best diagnostic treatment and treatment of patients,
– The pursuit of comprehensive care for patients during and after treatment,
– Informing and assisting patients and their relatives during treatment,
La Lampada di Aladino Onlus Association is based in Brugherio, in the province of Monza Brianza. It was founded in 2000 by a group of former cancer patients with the aim of supporting cancer patients and their families during the acute and post-acute phase of the disease.
Personalised support to blood cancer patients and their families. Education, psychosocial support and financial support.
LLF was established since 2002 as a charitable organisation in Singapore and is an Institute of Public Character. Our mission is to assist needy patients not only with the necessary treatment costs but also with the objective to improve the quality of their lives through counselling support and social activities.
Charity dedicated to funding blood cancer research in Northern Ireland
Leukaemia Care is a national blood cancer support charity. We are dedicated to ensuring that anyone affected by blood cancer receives the right information, advice and support.
A diagnosis of a blood cancer can have a huge impact on someone emotionally, as well as physically. We understand that feelings of shock, anger and loneliness are all common at the time of diagnosis, during treatment and recovery and having someone to talk to, as well as the right information available can be a huge comfort.
As the leading source of free blood cancer information and education for people living with blood cancer in Australia, we’re here every step of the way to help navigate the road ahead and help people in making informed decisions about their treatment and care.
At Leukaemia UK, we support those affected by leukaemia and other blood cancers through the physical, psychological and emotional uncertainty that may come with a diagnosis, working to fund innovative and effective research for better treatments and care.
The first self-help group for leukemia patients in Berlin was initiated by Lothar Krohn in May 2000. There are now two groups in which patients with leukemia, lymphoma and other rare diseases of the hematopoietic system and their relatives meet.
Our association Leukemia and Lymphoma Self-Help Berlin eV is non-profit and entered in the register of associations. We are volunteers, independent and neutral.
Leukaemia-Online is aimed at those affected, relatives and interested parties and, as a knowledge hub and exchange place, aims to contribute to greater transparency of developments in the treatment of leukaemia.
Leukämiehilfe Steiermark (Austria) provides support for those affected and their families. As a non-profit organization, we are committed to improving the hematology infrastructure and promoting and financing scientific research in this area.
LHRM is a patient-focused association, providing support and information for those affected by hematological disorders. Here, patients can find access to information through numerous, amiable formats regarding their condition and the course of treatment. Open discussions among other patients, caregivers and specialists provide access to quick, online guidance. LHRM also participates in the co-operation and exchange of information with other self-help groups, with a commitment to improving the overall patient environment.
The Oncological Patient Support Association “Tree of Life”(Dzivibas Koks) is tirelessly reiterating that life continues after cancer! It is different and often radically contrasting as values, perceptions of life, goals and priorities change. “Tree of Life” promotes mutual support when needed (psychosocial rehabilitation program “Power Source”, support groups, mentor movement), as well as provides information and cooperation with specialists and public organizations to jointly improve the health and social security system in the country.
The Asociación Civil Linfomas Argentina is a non-profit association that works by providing information, creating meeting places and offering guidance to patients with lymphomas, myelodysplastic syndromes and myelofibrosis, in order to help raise awareness of these diseases, providing support and thus contributing to improving the quality of life of people living with these diseases.
The Association’s main aim is to promote initiatives in favour of lymphoma patients and their relatives, and it wants to be a guide to better understand the diagnosis and the disease through simple and easily understandable information.
The aim of our association is to prevent, diagnose and treat blood cancer.
Dedicated to curing leukemia, lymphoma, myeloma, and other blood cancers, we are now The Leukemia & Lymphoma Society (LLS), the world’s largest voluntary (nonprofit) health organization dedicated to funding blood cancer research and providing education and patient services.
In the 1950s, five women around a kitchen table decided to make a difference and started raising money for leukemia research, founding what is now known as the Leukemia & Lymphoma Society of Canada.
Our aim in establishing LÖSEV is to help meet all kinds of needs, especially health and education, of children with leukemia and blood disease, as well as to provide treatment and education on hereditary and acquired blood diseases at the national level. and to establish and operate research institutions.
It was 1995 when the founders of the Lymphoma Research Foundation (LRF) realized its dual mission: to eradicate lymphoma – by funding innovative research – and serve those touched by this disease – by sharing research and treatment insights directly with the lymphoma community through national education programs and resources. Through lymphoma-specific research grants and consortia, LRF seeks to better understand the more than 100 subtypes of lymphoma and support the development of new treatments. LRF’s focus on supporting early-career scientists ensures the best and brightest remain in the field of lymphoma research so that innovation and progress continue. Simultaneously, LRF works tirelessly to help patients, survivors caregivers, and families understand their diagnosis and ensure they have access to the support and resources they need.
Luz de Esperanza is a non-profit civil organization created to support people with blood diseases, different types of cancer and high-cost diseases.
LyLe is a patient association for people affected by hematologic cancers – directly as patients or indirectly as relatives. The association’s history is short. Lyle started at an information meeting in April 2007 and its work is based on dialogue at the meeting. Overall Lyle work form 3 areas: dialogue with others, information and impact on systems.
Lymfklierkanker Vereniging Vlaanderen vzw (Lymphoma Association Flanders) is a patient organization for people with lymphoma, CLL and Waldenström’s disease and their loved ones in the Dutch part of Belgium. We give information about the disease, treatments and aftercare. We give info through our website, brochures, digital newsletter, webinars and symposia. We organize activities and bring patients and their loved ones together in our facebookgroup.
Since 2005, the patient organization LYMFOM HELP has been helping, associating and providing advice to patients with malignant lymphoma, their loved ones and friends.
We are an association of patients and relatives who have come to life with blood cancer. We place our treatment experience in our sincere efforts to help patients from the beginning of their diagnosis and treatment, during it and even after active treatment ends.
Our staff and volunteers work hard to make sure that everyone affected by lymphoma/CLL in the UK has the best possible information, support, treatment and care. To achieve this, we work closely with our Trustees and our Medical Advisory Panel.
Together we help people with lymphoma/CLL and their families by providing reliable information and the right support. We support doctors and nurses so that they can provide the best care possible to people with lymphoma/CLL. We raise awareness and make sure that lymphoma/CLL is not forgotten by government and policymakers. We support the thousands of fundraisers and volunteers who make our work possible.
Lymphoma Australia, in conjunction with our medical advisory board, helps patients and their families to understand their diagnosis and treatment options. We provide information packs to patients and hospitals and host education days and webinars to help people better understand Lymphoma.
Lymphoma Canada is the only Canadian charitable, not for profit organization that is dedicated to serving the Canadian lymphoma community. It focuses on all lymphomas including CLL, Hodgkin and non-Hodgkin lymphomas, providing information on new treatment options, research and patient education events to help the lymphoma community understand and partner in their care.
Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to patients with lymphoma, was formed in 2002 and incorporated as a not for profit organisation in 2010.
The need for a central hub of consistent as well as reliable current information was recognised as well as the need for lymphoma patient organisations to share resources, best practices, and policies and procedures. With this in mind, four lymphoma organisations started the LC. Today, there are over 80 member organisations from over 50 countries.
LC’s current strategy is focused on ensuring impact within two pillars: information and advocacy.
The association aims to help patients suffering from lymphoma and leukemia by increasing the level of knowledge about this disease to recognize the signs and symptoms, which would lead to an early detection of the disease and the possibility of starting treatment in time.
Within the Association, people from all categories are involved: doctors, patients who have been cured, patients in treatment, relatives, etc.
Through this Association, patients have the opportunity to get in touch with each other, to share their experiences to help them live a life as normal as possible and last but not least to know the rights of the patient.
The patient with lymphoma or leukemia needs support from both medical staff and family, friends or other patients who have had the same experience.
– Informing lymphoma patients,
– Guiding patients through their journey and give mental support,
– Networking, Connecting patients,
– Patient symposium,
– Telephon support.
The Lymphoma Patient Association LYPA is a Serbian Organization for lymphoma/CLL patients, family members, and friends. LYPA will continue to be the leading national Lymphoma patient association and we will try to improve the quality of life of lymphoma patients.
Macmillan Cancer Support will do whatever it takes to give you the answers to your questions about CLL or its treatment. Contact our information specialists and nurses to ask your questions on 0808 808 00 00 (UK only).
MRL has been involved in the fight against cancer since 1990 as a non-governmental organization.
Our most important tasks are: health education, raising awareness of the importance of early detection and self-examination, organizing and promoting screenings among the population.
“Mercy Bridge” provides legal, informational, and psychological support to patients with oncohematological diseases, protects their legitimate interests and rights, creates information portals aimed at patients with this type of nosology, conducts donor campaigns to collect whole blood, conducts patient schools and webinars, the task of which is to: informing patients about their disease, the possible occurrence of complications, methods of their prevention, about the rights of patients and ways to implement them.
We provide care and support for people living with chronic illnesses, like sickle cell disorder, diabetes, HIV/AIDS and cancer
The National Cancer Control Foundation was established on March 19, 2003. It is a national, non-profit charitable organization that enjoys a legal personality and has an independent financial liability. It exercises its activities and powers on a national charitable basis in accordance with the procedures stipulated in its statute and in accordance with the principles of the constitution.
The National Cancer Institute (NCI) is the federal government’s principal agency for cancer research and training.
Our team of approximately 3,500 is part of the National Institutes of Health (NIH), one of 11 agencies that make up the Department of Health and Human Services (HHS). NCI is deeply committed to the core values of equity, diversity, and inclusion that allow all staff to reach their potential and fully contribute to the Institute’s cancer mission.
New Sunshine is one of the largest charitable organizations in China focusing on medical and health services. New Sunshine owns the only non-governmental bone marrow donor registry in China. It has established the world’s largest Ward School program and provides comprehensive empowerment support for non-governmental non-profit organizations, especially medical organizations.
We are a non-profit Oncology Foundation, which aims to improve the quality of life of people suffering from cancer, their families and loved ones, through the generation of effective strategies (based on scientific evidence) and working together with patients, health professionals and the scientific community.
To achieve this, our main task is to provide comprehensive cancer information for cancer patients, their relatives, health professionals and students.
OSANNA is an association of citizens, which unites on a voluntary basis individual and collective members based on the unity of their professional and public interests.
The public organization was established to meet and protect its legitimate, social, economic, creative, age, national and cultural, sports interests, to promote environmental, health, amateur sports, cultural, educational and scientific activities and to protect its members suffering from chronic myelogenous leukemia.
Patient Power has a multi-decade history of providing CLL patients and their carers with up-to-date, credible, and compassionate information that supports through the entire cancer journey including survivorship. We are patient/carer journalists that focus on bringing the patient voice to everything we do, and we welcome collaboration with other support organizations to give our community a 360 degree set of information to empower them to take charge of their own healthcare decisions. We are excellent story tellers, news-gatherers, and media savvy reporters – with a long history of relationships globally with specialists, researchers, and patient advocates.
The Polish Cancer Patient Coalition is a joint voice of over 100,000 cancer patients in Poland, associated in 44 organizations from all over the country. Together, we work to improve the situation of all oncological patients, children and the quality and life expectancy of cancer patients in Poland, thanks to the implementation of the highest standards of prevention, diagnosis, therapy and oncological rehabilitation.
Hematon is the patient organisation for patients with a haematological-oncological disorder and/or people who have undergone a stem cell transplant. Their goal is to support patients in all aspects that life with and after cancer entails.
Our appeal is to people who have always wanted to know how to save lives!
The Foundation for the Promotion of Bone Marrow Transplantation (SFK) provides information on the requirements placed on a bone marrow/stem cell donor.
The Association of Friends of Lymphoma Patients “Przebiśnieg” is a young organization that started its activity in February 2008 as the Group of Patients with Lymphatic System Diseases, operating at the Hematology Clinic in Krakow, and since December 2009 it has been officially registered under the name of the Friends of the Sick Society. for “Snowdrop” lymphoma. The organization has the status of a Public Benefit Organization (OPP).
The mission of the Association is to promote knowledge about diseases of the lymphatic system, the possibilities and methods of their
diagnosis, diagnostic tests, treatment regimens and the availability of drugs.
The aim of the “Sowie Oczy” Association is to help patients in need by facilitating
their access to psycho-oncological and legal care as well as sharing knowledge and experience in the fight against
TBMTA is a patient group with members of patients and patients’ family – to hold seminars in northern, central and southern Taiwan periodically to educate patients and patient families about updated knowledge about blood related cancers, therapy, new medicines and how to care patient during and after therapy…
The Blood Cancer Foundation of Tanzania (BCFT) provides a platform where efforts are united to achieve the same goals. Within BCFT, we have disease specific support groups, the first one to start being the CLL Patient Support Group. Other will successively follow. The idea is to have the disease specific support groups functioning under the BCFT instead of having each one of them operating separately.
There is little social support offered to people with leukaemia, and awareness in the community is generally low. Tanzania CLL Patient Support Group aims at supporting and improving patient outcomes, access to treatment and coping with leukaemia.
Founded in August 2015 as a volunteer organization formed by the gathering of cancer patients. cancer survivor Professional doctors, professionals, academics, agencies and support organizations.
We are friends ready to help you.
The Association for Blood Cancer Patients Aid / Stowarzyszenie Pomocy Chorym na Nowotwory Krwi (Poland)
The main goal of the Association’s activities is to help patients of the Hematology Department of Zamojski Szpital Niepubliczny Sp. z o. o. through, among others:
– collecting funds for the purchase of diagnostic equipment and medical equipment for the treatment of patients,
– help in the supply of drugs,
– informing and educating patients and their families in the field of blood cancers,
– improving the conditions of hospitalization in the ward,
– promoting bone marrow donation.
The aim of the Association is to safeguard the best possible support for cancer patients and their loved ones during treatment and rehabilitation.
The Association is active in patient advocacy and involved in national HTA processes.
The Canadian Partnership Against Cancer is an independent organization funded by the federal government to accelerate action on cancer control for all Canadians.
The Partnership was founded in 2007 as the steward of the Canadian Strategy for Cancer Control (the Strategy). Ten years of shared effort has yielded results and key learnings related to effecting systemic change through unique modes of collaboration and improving the experience for Canadians with cancer and their families. Our goal is to translate what we have learned about the successes and barriers to change, into pervasive and impactful front-line policy and practice across Canada for the benefit of all cancer patients or those at risk of cancer.
Originally founded in February 2002 as the Myeloma Foundation and Support Group of Barbados, we broadened our scope in May of that year to include Lymphoma and Leukaemia and became known as The Myeloma, Lymphoma and Leukaemia Foundation of Barbados. We are registered as Charity #579.
The Foundation finds its genesis in the fact that the experiences and needs of persons afflicted with blood related cancers are extremely complex and far more unique than those afflicted with more well-known cancers.
The White Cell Foundation (TWCF) is a nongovernmental organization established to create awareness about blood cancers in Nigeria and to provide support for people with blood cancers and their families.
Udruga oboljelih od leukemije i limfoma ZAGRLJAJ – Association of leukemia and lymphoma patients “Embrace” (Bosnia and Herzegovina)
The All-Ukrainian Public Organization “Association for Assistance to the Disabled and Patients with Chronic Lymphoproliferative Diseases” was founded to create social assistance and protection programs for patients with CLP.
The association has united medical workers, scientists, patients, their relatives and other citizens in a common desire to provide selfless care to those who need it.
UNIDOS offers an effective, replicable and sustainable intersectoral care model capable of influencing public health policies, which allows the greatest possible number of people to be cared for.
We are a 28-year-old non-governmental organization with the objective to provide free medical, financial and emotional support to cancer warriors and their family members, through our carefully designed interventions.
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