CLLAN webinar: “How to sustainably build and develop a patient group” – registration now open!
How to sustainibly build and develop a patient group – Updates from CLL patient organisations: sustainability and service delivery in current times.
This webinar aims to empower patient advocates and leaders of new and established patient groups by discussing lessons learnt by the panel during the forming of their organisations.
To set the scene, the webinar will open with brief presentations that share experience. After these brief presentations there will be a participative Q&A discussion that will explore: organisational and service delivery priorities, sustainability, good practice and moving to the next level.
What have been the additional key challenges experienced during the pandemic?
- Moderator: Brian Gardom (CLL Support, UK) – an established national organisation (17 years)
- Moderator: Michael Rynne, CLLAN Steering Committee member and founding member of CLL Ireland – recently established national organisation (4 years)
- Lorna Warwick, leader of a worldwide network of patient groups (CEO Lymphoma Coalition) – FAQ discussion, good practice lessons
- Apendavyo Mshana, founder CLL Patient Supporting Group Tanzania (CLLPSGTz) – a new national group (1-2 years)
The webinar is taking place on Jun 30, 2021 06:30 PM CET / 05:30 PM BST
Please register by clicking on the following registration link: https://zoom.us/webinar/register/WN_7Ah_6K88TTuFXGz9CqMSZw