A major new international report, Global CLL Community Insights: How Stakeholders Can Collaborate to Improve Care, has been published

A major new international report, Global CLL Community Insights: How Stakeholders Can Collaborate to Improve Care, has been published, shedding light on the pressing physical, emotional, and informational challenges faced by people living with chronic lymphocytic leukaemia (CLL) and their care partners.

Drawing on survey data from 18 countries, the report calls for closer collaboration between patients, healthcare professionals, and advocacy organisations to improve communication, strengthen decision-making, and enhance quality of life.

Key Findings

• Emotional and physical impact: Fatigue, infections, anaemia, and anxiety are among the most common burdens, with two-thirds of patients reporting heightened anxiety since diagnosis.
• Information gaps: Nearly half of patients do not receive written information at diagnosis, leaving many without clear guidance.
• Decision-making shortfalls: Although most patients want to be active in treatment decisions, many are not presented with more than one option.

Recommendations

The report highlights four priority actions for better care: addressing both physical and emotional needs, proactive engagement with patients, multidisciplinary care approaches, and empowering patients through shared decision-making.

By placing patients and care partners at the centre of decisions, the report emphasises that CLL care can become more supportive, effective, and empowering.

👉 Read the full report: Global CLL Community Insights

This report was developed and funded by AbbVie, in partnership with CLLAN (CLL Advocates Network), leveraging insights from the global CLL patient and care partner community.