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30 June 2021

How to sustainably build and develop a patient group



On 30 June 2021, CLLAN (CLL Advocates Network) hosted a webinar to empower patient advocates and leaders of new and established patient groups of lessons learned by the panel during the forming of their organisations, early years, and service delivery today. The webinar started with three short presentations to share individual support group experience, achievements and working processes that set the scene ahead of a moderated Q&A discussion. The session explored organisational and service delivery priorities, sustainability, good practice and moving to the next level. A key observation of the webinar was that it identified the impact of the pandemic and good practice strategies when focusing service delivery priorities. An important aspect of succession planning is considering capacity due to inherent health issues in patient-led organisations.

Webinar panel:

  • Moderator: Brian Gardom, trustee, CLL Support, UK
  • Speaker: Michael Rynne, CLLAN Steering Committee member and founding member of CLL Ireland
  • Speaker: Dr Neil Graham, trustee and founder of CLL Advocates NZ
  • Speaker: Apendavyo Mshana, founder of CLL Patient Support Group
    Tanzania, Executive Secretary, Blood Cancer Foundation of Tanzania
  • FAQ and discussion, Lorna Warwick, CEO Lymphoma Coalition, good practice and sustainability

Please click here to access the recording.

Please click here to view the slides.

A big thank you to our panellists for their excellent presentations, their insight and for sharing their wealth of experience. A special thank you also goes to our event moderator, and to all those that have contributed to the success of this webinar in the back-end – and of course to our audience for your interest!



We would like to thank the following company for supporting this initiative: