Insights from the 2024 CLL Advocacy Survey

We are pleased to share the findings from the 2024 CLL Advocacy Survey, which gathered perspectives from 55 organisations across 42 countries to better understand the unmet needs, challenges, and priorities of the CLL advocacy community.

The survey highlights:

• High engagement with CLLAN resources – 89% of organisations use at least one, most commonly the CLLAN website and World CLL Day campaign materials.
• Top priorities for new resources – medical updates on CLL, patient education, advocacy, access to treatment and diagnostics, and patient support.
• Barriers to service delivery – insufficient financial and human resources remain the leading challenges, especially for organisations in low- and middle-income countries.
• Healthcare access inequities – delayed diagnosis and limited clinical trial access are reported far more often in LMICs compared to HICs.
• Changing landscape post-COVID-19 – more organisations are investing in online education and advocacy, while demand for personal advocacy and emotional support continues to grow.

These findings will guide future priorities for CLLAN and the wider CLL advocacy network, ensuring that resources, collaboration, and advocacy efforts meet the evolving needs of patients and caregivers worldwide.

👉 Access the Executive Summary here

Thank you to all the organisations who took part in the 2024 CLL Advocacy Survey. Your insights are invaluable in shaping stronger support, better resources, and improved care for people living with CLL worldwide.